Histiocytosis Association
The Histiocytosis Association, a non-profit organization registered with the Federal Government, is dedicated to helping those dealing with the effects of rare histiocytic disorders by providing a variety of educational programs and emotional support services. In addition, the Association promotes examination of histiocytic disorders through scientific and medical research, with the aim of establishing better treatments, a cure, and ultimately, prevention of the diseases.
NLRP3 inflammasome–driven HLH interview (Spanish Subtitles Available)
NLRP3 inflammasome–driven HLH interview
Histio Ambassador and Child LCH Survivor Diana interviewing her mom
Childhood LCH Survivor and Ambassador Stephanie Interviews her Parents on Treatment
Interview on ECD With Significant Response of Large Vessel Disease to Cobimetinib Monotherapy
Interview with Dr. Jan-Inge Henter on New England Journal of Medicine Article
Research on Combined Therapy for ECD Interview
Article on Kidney involvement in Non-Langerhans histiocytic disorders
Reducing hyperinflammation in secondary hemophagocytic lymphohistiocytosis
Mental Health Awareness Month Q&A
Important Leadership Announcement
Dr. Paul Milne (Newcastle University) 2024 Grant Award Surprise Video
Dr. Kim Nichols (St. Jude) 2024 Grant Award Surprise Video
2024 Grant Awarding Call - Dr. Egle Kvedaraite
2024 Histio Grant Awarding Call - Dr. Astrid van Halteren
2024 Histio Grant Awarding Call - Dr. Toni Cathomen
Anxiety and depression in patients with histiocytic neoplasms and their associated clinical features
Histio Ambassador/Parent Michelle Interview
Interview with Aimee Kwan, LCH Family Member
Interview on Approach to the Patient: From Endocrinopathy to the Diagnosis of a Histiocytic Disorder
Rosai Dorfman Disease: From Rare to Understood Webinar
Sarah Grace Histio Student Scholarship Update Interview
PLCH webinar 2025 Spanish
![[English] Pulmonary Langerhans cell histiocytosis: Gathering Patients' Views](https://ricktube.ru/thumbnail/OFCBcRJCg2k/mqdefault.jpg)
[English] Pulmonary Langerhans cell histiocytosis: Gathering Patients' Views
Emapalumab therapy interview with Dr. Bethany Verkamp
Phase 1b Mayo Clinic Trial for Oral Selective Inhibitor for Histiocytic Neoplams/Lymphomas
Real HLH Interview on Emapalumab Therapy
Interview Robin and Mark, HLH with CNS parents
Interview with Dr. Randy Cron on Role of DOCK8 in Cytokine Storm Syndromes (HLH,MAS,etc.)
Meet LCH Caregiver and Advocate Fernando Gotz