Parent Project Muscular Dystrophy
Parent Project Muscular Dystrophy (PPMD) is the largest nonprofit organization in the United States focused entirely on Duchenne muscular dystrophy.
We take a comprehensive approach in the fight against Duchenne—funding research, raising awareness, promoting advocacy, connecting the community, and broadening treatment options. Only this comprehensive approach will lead to the day that 100% of those diagnosed can turn to a treatment that will lead to the end of Duchenne muscular dystrophy.
Webinar Disclaimer: Webinars are intended solely to provide information to the public. The views and opinions expressed as part of these webinars do not necessarily state or reflect those of Parent Project Muscular Dystrophy (PPMD).
Webinar: Avidity Biosciences - EXPLORE44-OLE® Topline and Functional Data Presentation
Understanding CK Levels: CK Levels and Newborn Screening
Understanding CK Levels: Interpreting Creatine Kinase Levels in the Clinic
Understanding CK Levels: An Introduction to Creatine Kinase (CK) Levels
Becker Muscular Dystrophy Series – Part 2: Cardiopulmonary Care in Becker Muscular Dystrophy
Pat Chat: Get to Know PPMD CEO Katherine Beaverson, MS
Staying Safe: Avoiding Falls and Recognizing Signs of Fat Embolism Syndrome (FES)
Neuromuscular Care and Genetic Considerations in Becker
Building Protection: Vaccines and Dystrophinopathy
Webinar: Understanding BiPAP - Why It’s Needed, What Gets in the Way, and How to Increase Compliance
Webinar: Capricor - Regulatory Update & Clinical Insights on Deramiocel for Duchenne Cardiomyopathy
PPMD 2025 Annual Conference: Day 1 - Exploring the Gene Therapy Landscape
PPMD 2025 Annual Conference: Day 1 - The Impact of Diagnosis: Managing Family Dynamics
PPMD 2025 Annual Conference: Day 1 - A New Era in Duchenne & Becker Muscular Dystrophy
PPMD 2025 Annual Conference: Day 1 - A New Era of Steroids, Endocrinology & Emergency Care
PPMD 2025 Annual Conference: Day 1 - Empowering Families through Community, Care & Research
PPMD 2025 Annual Conference: Day 2 - Building Friendships & Self Advocacy Skills
PPMD 2025 Annual Conference: Day 2 - Meeting the Challenge of Rare Disease: 25 Years of Lessons
PPMD 2025 Annual Conference: Day 2 - Approved Therapies & Sequential Therapy
PPMD 2025 Annual Conference: Day 2 - How do We Get to the Next Step in Research? The DCRN Explained
PPMD 2025 Annual Conference: Day 2 - Exercise: How Much is Too Much?
PPMD 2025 Annual Conference: Day 2 - Navigating Behaviors: Strategies for Support & Success
PPMD 2025 Annual Conference: Day 2 - Nurturing Mental Wellness in Everyday Life
PPMD 2025 Annual Conference: Day 3 - Taking Charge of Your Future: A PAAC Presentation
PPMD 2025 Annual Conference: Day 3 - Cardiac Management Throughout the Lifespan
PPMD 2025 Annual Conference: Day 3 - Finding Light in the Journey
PPMD 2025 Annual Conference: Day 3 - How MRI is Advancing Drug Development for Duchenne
PPMD 2025 Annual Conference: Day 3 - A New Take on the Ins and Outs