The Ehlers-Danlos Society
The Ehlers-Danlos Society is a global organization dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.
Our vision is to create a world in which each person living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders has the right treatment and care at the right time for their specific needs. Find support and information at ehlers-danlos.com
Any medical information found here should be discussed with your doctors thoroughly before taking action.
Thank you Australia! Relive the 2025 Global Learning Conference
Making a difference for EDS and HSD — Thank you 2024!
Equitable Care: Empowering Marginalized Voices in EDS and HSD
The Ehlers-Danlos Society 2024 Global Learning Conference
Celebrating 5 Years of EDS ECHO
'Conversations With' Series: Accessing care as a 2SLGBTQIA+ individual
2021 Visceral Arteries in vEDS - Dr. Amani Politano
2021 The Aorta and Iliac Arteries Pathology in vEDS - Dr. Sherene Shalhub
2021 Family Planning, Anticipating & Managing Pregnancy Complications - Dr. Melissa Russo
2021 Carotid, Vertebral, and Subclavian Arteries in vEDS - Dr. John Westley Ohman
2021 What My Toolbox Looks Like, And How You Could Build Yours - Katie Wright
2021 Outpatient Medical Management in vEDS - Dr. Fleur Van Dijk & Dr. Glenda Sobey
2021 Gene Modifiers Loci Associated to Colonic Perforation - Dr. Xavier Jeunemaitre
2021 Migraine in vascular EDS - Dr. Manjit Matharu
2021 Ambulatory BP Study - Dr. Siddarth Prakash
2021 Genetics and Molecular Biology in vEDS - Dr. Lauren Puryear
2021 Natural History Study Update - Dr. Stephanie Wallace
2021 Psychosocial Issues in Patients Living With vEDS - Leanne Barrett
2021 Intestinal Emergencies in vEDS - Dr. Jessica A. Zagory
2021 Interpreting the Genetic Testing Report - Dr. Duncan Baker & Dr. Neeti Ghali
2021 School Adaptations for vEDS - Jared Griffin
2021 Managing Lumbar Instability - Dr.Russek
2021 Peripheral Neuropathy - Dr. David Saperstein
2021 Persistent Headache and Migraine - Dr. Salwa Kamourieh
2021 Orthostatic Headache - Dr. Manjit Matharu
2022 Autoimmune Rheumatic Disease and Ehlers-Danlos Syndromes - Dr. Clair Francomano
2022 Coping with the Challenges and Fears of MCAS - Courtney Rabb
2022 Immune Dysfunction in HSD and EDS: Beyond Mast Cell Activation Disease - Dr. Anne Maitland
2022 Our Immune System - Dr. Anne Maitland
2022 Disorders of Mast Cells and Mast Cell Activation - Dr. Mariana Castells