The Ehlers-Danlos Society
The Ehlers-Danlos Society is a global organization dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.
Our vision is to create a world in which each person living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders has the right treatment and care at the right time for their specific needs. Find support and information at ehlers-danlos.com
Any medical information found here should be discussed with your doctors thoroughly before taking action.
2024 - Food, Fear, and Dietary Restrictions: A Safe Approach to Disordered Eating - Alison Holloway
2024 - Food Allergies: Understanding Complexities of Presenting Symptoms and Assessment- Anna Pettit
2024 - Chronic Pain: Exploring Dietary Management of Pain - Dr. Jessica Pizano
2024 - The Food Matrix: Understanding Food Types and Digestion - Lorna Ryan
2024 - Pain Studies - Dr. Anne-Marie Malfait
2024 - Research for All: Supporting Participation of Marginalized Communities - Dr. Serwet Demirdas
2024 - EDS Classification: Process & Points of Discussion - Prof. Fransiska Malfait
2024 - Q&A Session - Insights and Management Strategies in Rare Disease
2024 - Variants of Unknown Significance for the Rarer Types of EDS - Dr. Roberto Mendoza-Londono
2024 - Living With Heritable Vascular Disease: Exercise and Activity - Dr. Siddharth Parakash
2024 - Managing Lung Complications in EDS - Dr. Enid Neptune
2024 - Periodontal EDS: The Key to Hypermobile EDS - Dr. Anne Maitland
Нарушая молчание о мужском психическом здоровье
2024 - Embracing Resilience: Healing from Trauma and Loss - Kayla Scott
2024 - vEDS 101 - Dr. Peter Byers
2024 - Q&A Session - Living with a Rarer Type of EDS: Coping and Resilience Part 2
2024 — Сессия вопросов и ответов — Жизнь с редким типом СЭД: преодоление трудностей и устойчивост...
2024 - Prioritizing Mental Health: Resiliency & Seeking Support - Dr. Valerie Iovine Rogers
2024 — Сессия вопросов и ответов — Новые направления медицинской помощи
2024 - Non-pharmacologic Management Approaches for EDS and HSD - Dr. Shilpa Gajarawala
2024 - Brain-Based Therapies for EDS Comorbidities - Dr. Kevin Lasko
Panel Q&A Building Strength, Stability, & Supporting Immunity - 2024 GLC
2024 - Keeping Realistically Active: Adaptive Exercise When Living with EDS/HSD- Dr. Marcia Perretto
2024 - They Kneed it: Strength Promotion in the Hypermobile Patient - David Shirey
2024 - Whole Body Rehabilitation Exergaming - Dr. Nathan Mayberry
2024 - Injury Prevention in EDS & HSD - Dr. Alissa Zingman
2024 - Corrective and Functional Exercise for Hypermobility - Andrea Julian
2024 - Q&A Session - Musculoskeletal Management
2024 - Q&A Session - The Pelvis and Hips
2024 - The Pelvis is the Center of the Universe - Dr. Cynthia Neville