Sick Cells
Sick Cells' mission is to elevate the voices of the sickle cell disease (SCD) community and their stories of resilience.
2025 Sick Cells Therapeutics Conference: 7. Getting Involved, Overcoming Barriers to Clinical Trials
2025 Sick Cells Therapeutics Conference: 2. Therapeutics Landscape & Clinical Trial Overview
2025 Sick Cells Therapeutics Conference: 6. Holistic Care, Expanding on Normative Care
2025 Sick Cells Therapeutics Conference: 1. Opening and Keynote Session
2025 Sick Cells Therapeutics Conference: 5. Policy Implications on Therapeutic Development
2025 Sick Cells Therapeutics Conference: 4. Community Experience with Clinical Trials
2025 Sick Cells Therapeutics Conference: 8. Closing Remarks
2025 Sick Cells Therapeutics Conference: 3. Clinical Trial Education with a Patient Educator
2024 Coverage for SCD Summit
2024 SCD Policy Forum: Guided Break, Meditation and Breathing Exercise
2024 SCD Policy Forum: Session 7, Hill Day Training and Review of Legislative Asks
2024 SCD Policy Forum: Session 6, Considerations for Cell and Gene Therapy Model
2024 SCD Policy Forum: Session 5, Community Perspective on HRSA Follow-Up Programs
2024 SCD Policy Forum: Session 4, Insights into the SCD Demonstration and Follow-Up Programs
2024 SCD Policy Forum: Session 3, Progress Updates about the SCD Data Collection Program
2024 SCD Policy Forum: Session 2, Updates on SCD Treatment Act of 2023
2024 SCD Policy Forum: Session 1, Keynote Address
Sick Cells Community Webinar: Information on the 2023 FDA Advisory Committee for Gene Therapy.
2023 Coverage for SCD Summit
2023 National SCD Policy Forum: Next Generation
National SCD Policy Forum 2023
Project SCoviD: A Sickle Cell Disease Community Resource
Community-Based Participatory Research (CBPR) for Patient Preference Data
Medicaid Access & Landscape Review
Hispanic Outreach Promoting Equity Project
Sickle Cell Disease State Policy Analysis & Repository
2022 Coverage for SCD Summit: Event Recording
2022 Coverage for SCD Summit: The Patient Perspective (CME Pre-Read/Supplemental)
Sickle Cell Disease & Blood Donation