EDS Awareness
Chronic Pain Partners/EDS Awareness, a US-based non-profit 501(c)(3) organization, was created in 2011 to support people with Ehlers-Danlos syndromes. It is an online resource for the Ehlers-Danlos Syndrome community, their caregivers, medical professionals, and everyone interested in learning more about the genetic connective tissue disorder.
Chronic Pain Partners helps create independent, local EDS Support groups, hosts live webinars to help educate our members, caregivers and healthcare providers, and launched a CME program for physicians and another one for nurses, and lately, we have developed towards becoming a multimedia online magazine for people with varying chronic pain conditions, producing high-quality video content and documentary films as well as a monthly newsletter with original content only found on our website!
Website: https://www.chronicpainpartners.com
Proud Stutter (Trailer, HD)
EDS Awareness Education Series Summary
EDS Awareness Education Series
EDSed Episode 4: Dr. Jacqueline Wolf on EDS & GI Symptoms, Endometriosis
Lego Oma Trailer
EDSed, Episode 3: PT Elan Schneider on Neuroplasticity and New Chronic Pain Treatments
We Are Visible (Too), Episode 2: Caitlin O'Donnell
EDSed, Episode 2: PT Dr. Lilian Holm
EDSed, Episode 1: The Norris Lab
We Are Visible Trailer 1
We Are Visible Trailer 2
We Are Visible (Too) - Episode 1: Sarah Rightmire
Sonny Mullen presents “A Guide to Medical Fundraising”
Andrea Julian - EDS Leadership Program - Starting and Maintaining a successful support group
Mast Cell Activation Disease Current Concepts
John Ferman - EDS Leadership Program - Introduction
Dr. Linda Bluestein - EDS Leadership Program - EDS the Invisible Condition
Maria Dastur - EDS Leadership Program - Social Media For Patient Support Groups
Mandy Harvey - EDS Leadership Program - Interview
EDS Leadership Program Panel Discussion
John Ferman - EDS Leadership Program - Concluding Remarks
Amanda Aikulola, LPN - EDS Leadership Program - Advocacy 101
Mandy Harvey - EDS Leadership Program - Entertainment program
Clair Francomano MD presents “EDS Overview of Diagnosis and Management"
Kendra Neilsen Myles - EDS Leadership Program - Business & Social Guidelines
Cathy Rouhier - EDS Leadership Program - Children/Teen Support Groups
Dr Alan Pocinki presents "Sleep Disorders in EDS"
Ross A. Hauser, MD presents "The Consequences of Joint Instabilities in hEDS"
Bonnie Nasar RDN presents “Optimizing your nutrition to decrease brain fog, fatigue, & chronic pain”