KrabbeConnect
OUR MISSION
KrabbeConnect's mission is to be the source of comprehensive information and access to resources for patients with Krabbe disease. The foundation will drive state of the art research by bridging the gap between science and patient knowledge.
OUR VISION
A day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.
Grief, Love, and the Holidays: Creating Space for What We Carry
Insights and Data from the ReKlaim (FBX-101) Clinical Trial
Caregiver Webinar: Experiences Navigating Treatment for Krabbe disease
IKD and LIKD Study
Two Sisters Journey with Krabbe disease: The Moore Family Story
(Uncut interview) How Grandpa Bruce Reworks Cove's Law in Georgia
Cloud Family Interview (uncut)
Grandpa Bruce Reworks Cove's Law in Georgia Final Draft
How the Kirbo and Ellis Family Navigate Krabbe disease
KrabbeConnect Presented the 2022 Wise Scholar Award to Dr. Joanne Kurtzberg
Newborn Screening Gives Jasper a Chance at Life
Dr. Allyson Bradbury Pivotal Work in Krabbe disease
Webinar: Rationale for Reduced-Intensity Conditioning (RIC) Transplantation in Krabbe Disease
2021 A Million Dreams Gala
KrabbeConnect Gala 2020 Short Interview with Grujicic Family
Krabbe disease Tribute
Transplant Alone is Not a Cure
Nikola's Krabbe Disease Story: Extended Interview
Krabbe Disease: An Autosomal Recessive Disease
Krabbe disease: One Parent's Journey
Partner With Us KrabbeConnect final video