James Parkin - living life, DMD style!!
Hi my name is James Parkin, i am 31 years old and i have Duchenne Muscular Dystrophy (DMD)
Duchenne Muscular Dystrophy is a muscle wasting condition, so over a period of time my muscles weaken over time. It is 100% fatal with no cure. The average life expectancy is about mid 20's.
I started walking late. I was always last in the egg and spoon race at school. I lost the ability to walk aged 10. Couldn't stand a bit later. Was introduced to a ventilator at 15 and two years later was wearing it all night every night. When I was 18 I lost Thomas. My brother. He was 16 and had exactly the same disability.
however i want to show people that it is possible to live the same life as anyone else. i like to go out and do things and make the most of life. so i will be posting as much content as i can. if it helps people it will be well worth it
I've changed care providers!! A major change (with some similarities)
I went to the GLADIATORS live tour in Manchester!!
Dealing with changes in health!! I need to use my ventilator more!!
SIGHTSEEING AROUND WHITBY!! plus famous Whitby fish and chips!!
i took a trip to WHITBY ABBEY!! overlooking Whitby harbour!!
I stayed in an accessible cottage near Whitby!! Summerfield Farm!!
i built a model of the London Skyline.....using LEGO!!
I got frustrated by the state of the world!! So i decided to write a poem!!
Talking about my Cough Assist!! (2025 remastered)
Its time to talk about my VENTILATOR (2025 remastered)
How different types of weather affects me? How do i adapt to it?
I went to a LEGO art exhibition!! THE ART OF THE BRICK!!
I went to the WENSLEYDALE Creamery! Where the famous cheese is made!
The long wait is over!! i went to see OASIS at Wembley Stadium!!
I Made A Rolo Cheesecake!! On My 32nd Birthday!!
I went to the "Tropical Butterfly House" it has a lot of other animals as well!!
I Went to Hardwick Hall for the day!!
I used CHATGPT for the very first time!! Created a funny montage video!!
Izzy and Charlie showing off their favourite summer activity!!
Pottering Around Manchester!! it was a great day in the Sunshinnnnnne!!
Stayed in a "Very Accessible Hotel" in MANCHESTER!!
I Went to the remains of a 12th Century Castle in WAKEFIELD!!
Checking out the new £12 million Pedestrian bridge in Barnsley!! Was spending this much worth it??
Went to Barnsley's MARKET KITCHEN!! Tried POUTINE For The First Time!!
I went to a local "SOAP BOX DERBY" it was a really fun day!!
Visited "EUROPES LARGEST PURPOSE BUILT FOOD HALL" In SHEFFIELD!!
Recreating My Favourite Sketch From "Saturday Night Live!"
Questions with Gavin!! HOPE I DON'T GET BANNED OFF YOUTUBE!!
Went to "EQUINE DREAMS OF BAWTRY" Such a magical place (especially if you like horses!!)
I went to the INTERNATIONAL BOMBER COMMAND CENTRE In Lincoln!!