Duchenne UK
www.duchenneuk.org.
Duchenne UK is a lean, ambitious and highly focused charity with a clear vision: to fund and accelerate treatments and a cure for Duchenne muscular dystrophy. The charity has been formed by the coming together of Joining Jack and Duchenne Children's Trust, the two biggest funders of research in the UK in the last three years. We are committed to continuing to drive momentum to deliver treatments to help this generation of those with DMD.
Session 8: Understanding our work to get treatments to our community
Next generation data and technology in DMD
Session 6: Clinical trials
Session 1: The DMD research landscape
Session 3: What to look out for when reading scientific communications
Introduction to DMD Care UK
Session 7: Next generation data and technology in DMD
What Works at School: Strategies and approaches for young people with DMD
Session 5: Understanding DMD
Session 2: A spotlight on gene therapies
DMD Care UK: Working with National Institute of Clinical Excellence NICE
Session 11: Community Panel Session
Session 10: Introducing new treatments into standards of care
Our second New Horizons conference
Learn about the DMD Care UK Nutrition Working Group
Take part in the NutrInD (Nutrition in Duchenne) study
Sign up for the Duchenne Dash 2026!
The amazing Duchenne Dash of 2025!
Time is Muscle in Parliament: Adjournment debate on treatment of Duchenne muscular dystrophy
London Assembly unanimously backs Duchenne UK’s Time is Muscle campaign
Ending the postcode lottery for access to givinostat
Coverage of #TimeisMuscle campaign on BBC Breakfast (1 June 2025)
Coverage of #TimeisMuscle campaign on Look North North East and Cumbria Evening News (28 May 2025)
The amazing Duchenne Dash 2025
BBC North West Tonight, 24 April 2025
DMD Care UK webinar 'Vamorolone for Duchenne muscular dystrophy a summary of evidence for families'
Learn more about puberty and Duchenne muscular dystrophy
Question from Clive Efford MP about access to givinostat
Session 9: Industry panel session