CreakyJoints
CreakyJoints® is an international digital community for millions of patients and caregivers worldwide who seek education, support, advocacy, and patient-centered research. We represent patients through our popular social media channels, our website https://creakyjoints.org, and the 50-State Network, which includes more than 1,500 trained volunteer patient activists.
The Global Healthy Living Foundation (GHLF) is the parent organization of CreakyJoints®. Via CreakyJoints®, GHLF also hosts PainSpot (PainSpot.org), a digital risk-assessment tool for musculoskeletal conditions and injuries, eRheum (eRheum.org), for telehealth and virtual-care support, and a constantly refreshed library of podcasts via the GHLF Podcast Network. GHLF oversees the patient-reported outcomes registry PatientSpot™ with 50,000 consented patients who track their disease while volunteering to participate in longitudinal and observational research.
S8, Ep 43- 2025 Year-End Public Health Recap
Q&A: Putting Patients First in Autoimmune Clinical Research
Walking the Treatment Path to a Brighter Future
2025 ACR Lupus Guidelines Uncovered: What Every Patient Should Know
S8, Ep 42- ACIP Meeting Recap: What Happened and What It Means for Patients
S8, Ep 41- Building Trust in Health: A Texas Lawmaker’s View on Prevention, Access, and Equity
S8, Ep 40- Turkey Day Conversations: How to Talk About Vaccines With Your Family
Part 2 — Beyond the Diagnosis: The Emotional Side of Living with IgG4-Related Disease
Part 1 — Speaking Up for a Diagnosis: Living with IgG4-Related Disease
S8, Ep 39- Government Shutdowns & IgG4-RD: What Patients Need to Know
S8, Ep 38- What Pandemics Reveal: Dr. Tyler Evans on Poverty, Politics, and Public Health
S6, Ep 10- TrumpRx & the Future of Drug Pricing: What Patients Need to Know
Knowing When Fine is Not Fine: One AxSpA Patient's Experience
S8, Ep 37- Open Enrollment 2026: What Patients Need to Know
From Pain to Power – A Lupus Journey of Hope
RSV Isn’t Just for Kids: The Rise of Adult Risk
A New Horizon for Treating Lupus
S8, Ep 36- Raising Awareness on GCA Awareness Day: Kathi Lopez's Story
Why Staying Up to Date on COVID Vaccines Matters If You Live With a Chronic Condition
Новый подход к аутоиммунному лечению с помощью CLN-978
CLN-978: The Future of Lupus, Rheumatoid Arthritis, and Sjögren’s Disease Treatment
Проливая свет на GCA: история о стойкости к Дню осведомленности о GCA
S8, Ep 35- How Nobel-Winning Science is Bringing Hope to People With Autoimmune Diseases
Flu Season 2025: What You Need to Know (Especially If You’re at Risk)
S8, Ep 34- When the Lights Go Off — Public Health in a Shutdown
S8, Ep 33- Turning Data Into Impact: RJ Kedziora's Approach to Improving Health Outcomes
S6, Ep 9- High Awareness, Low Access – Inside the COVID-19 Antiviral Gap
S8, Ep 32- ACIP's COVID-19 Vote and Trump's Tylenol Claim: Another Wild Week!
Webinar — Polymyalgia Rheumatica: Closing Gaps in Diagnosis and Disease Monitoring
S8, Ep 31- Fall Vaccines 2025: What You Need to Know