Courageous Parents Network
Courageous Parents Network channel features videos of parents of children with serious, life-threatening illness sharing their experiences across a wide range of psychosocial and emotional issues. It is not disease specific but is for anyone who is seeking community and a desire to hear from other parents to know that they can do this. Issues explored include: coping with the diagnosis, spirituality, marriage, caring for the other healthy children/siblings, working with the medical team, self-care, control, decision-making and palliative care, questions about end-of-life, transitioning to end-of-life, bereavement, parental identity, and meaning making. Videos also include a pediatric psychologist and grief counselor who frames the issues, a palliative care doctor, a palliative care nurse, and a chaplain.
Доктор Терри Мейджор-Кинкейд: от неонатолога до врача паллиативной помощи
Предубеждения, которые существуют в отделении интенсивной терапии новорожденных: «Мы недооценивае...
Врач о решениях и минимизации сожалений: «Семьи могут принимать разные решения изо дня в день».
Врач о принятии решений: «Меня беспокоит, когда формулировка вопроса включает в себя суждение».
Врач о том, как помочь родителям в принятии решений: «Редко бывает так, что все находятся в одина...
Врач: «Я родитель команды»
A physician: "The hardest part of the job is not difficult conversations; it is care coordination."
История врача: Когда семья чувствует, что у них нет разрешения врача на принятие определенного ре...
Любимый вопрос врача: «Что самое важное нужно знать, чтобы наилучшим образом заботиться о своем р...
A palliative care physician’s empowering advice to families who feel they aren’t being heard.
Врач отделения паллиативной помощи детям: «Иногда семьям требуется разрешение на съезд с пандуса».
CPN In the Room: Here Come the Holidays (Gulp)
ITR Recording: Children have spiritual lives too, with Amanda Borchik and 2 parents
Врач-специалист по паллиативной помощи детям о том, как он ответил на простой вопрос: «Как для ва...
Keep Your Head Up: Recording of CPN Book Talk with Dr. Tasha Faruqui
CPN In the Room: You Can Never Be Too Prepared: Pediatric Disaster and Emergency Preparedness
A mother to clinicians: “You have to be mindful of your words Always leave a little room for hope ”
The best advice I got as a NICU Mom: Push aside all the predictions, love him and give him the tools
Decision making in the NICU: When the mom and dad are thinking at different scales of time.
The death of a child and a husband, and now solo parenting: “I’ve learned to live life with grief.”
Mom: The focus is on the baby, but mom and dad need strengthening too, to be equipped and empowered.
Good adequate care should encompass what happens once the children come home from the hospital fixe
The mom of a medically complex little boy: "Families need help navigating this health care system."
Recording of CPN's ITR: Building Memories and Living your Child’s Legacy Together
Demo NewCPN 2025
“How we perceive her life can change with time … It’s so brief life but it continues in its way."
Having the fortitude to push medical team, from whom we're looking for an honest answer, was hard.
A mother on the agonizing lonely decision to choose hospice for her child: “Nobody talks about it."
Wondering if your child is going to be the exception: “There are always those cases.”
From the moment of birth: “We were not ready for her actual diagnosis.”