OurBrainBank for Glioblastoma
Moving Glioblastoma from terminal to treatable. Powered by patients. OurBrainBank is the first non-profit created by, with, and for people living with Glioblastoma. GBM is an aggressive and rare brain cancer. The 5-year survival rate is 5%.
OBB founder Jessica Morris was diagnosed with GBM in 2016. Frustrated by the paucity of options, she brought together fellow patients, neuro-oncologists, and tech experts to form OBB.
Our pilot study used a free app to enable people to track symptoms and health indicators and donate data. Currently we're collecting more data to help further GBM research.
Patient-driven data is the new currency in medical research and apps the new empowerment tool for patients. It could potentially have the same impact as a blockbuster new drug.
Sadly OurBrainBank Founder and Chair Jessica Morris died from GBM on June 8, 2021. Please consider a gift to carry on her vision: OurBrainBank.org. New York Times obituary: https://ourbrainbank.org/obituary
Jessica Morris In Memoriam
Jana Bennett's GBM experience
Jana Bennett's glioblastoma experience
Dr. Alexis Demopoulos for OurBrainBank
Ed and Jessica's story
Neuro-Oncologist Dr. Alexis Demopoulos on GBM; OurBrainBank Voices 2020
Chair of OurBrainBank on Glioblastoma Awareness Day, July 20, 2022
OurBrainBank Voices: Helen Bulbeck of brainstrust
Julian Sands reading the Glioblastoma Bill of Rights
OurBrainBank Voices: Trialjectory, a conversation with CEO Tzvia Bader on GBM clinical trials
Optune/Tumor Treating Fields | OurBrainBank Voices (glioblastoma)
OurBrainBank Voices: Celebrating Jessica Morris and the OurBrainBank movement. April 13, 2021
Glioblastoma: overview, treatments, and importance of clinical trials, 2021
Cancer and the Mighty You, a children's book about understanding cancer and how kids can help
OurBrainBank Voices: guest speaker Research to the People
Tracy Edwards, a social worker with the Brain Tumor Network, outlines their free resources
Research to the People on OurBrainBank for Glioblastoma Voices chat
Dr. Jeffrey Rediger, author of "Cured" for OurBrainBank Voices
OurBrainBank Principal Investigator Kelli Duprey presented a poster at AONN 2020
Yaron Butterfield on his GBM research and being a long-term glioblastoma survivor 12/2020
Arts In Mind
OurBrainBank Voices chat with special guest Dr. Courtney Burnett, living with a brain tumor
Mindfulness and meditation for people living with #GBM (2020)
Medicare, Medicaid, Disability, Insurance, Benefits, & Finances for People Living with Glioblastoma
OurBrainBank founder Jessica Morris (2017)
GBM Bill of Rights (with music) 2020
GBM Bill of Rights Video 2020