Silvia Corradin (EBmom)
Mom to 3 boys, 1 in heaven, 2 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who has the Recessive Dystrophic form of Epidermolysis Bullosa. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more.
My channel proudly supports Epidermolysis Bullosa Awareness (ebinfoworld.com)
My books about my experiences with loss & raising a special needs child:
butterflychildamothersjourney.com
Good Grief Podcast Episode 5 - A Unique and Personal Journey
Good Grief Podcast Episode 4 - What is Grief?
Nicholas Zahorcak's Memorial Service
Nicky's Memorial Video
Butterfly Talk - Update on Nicky & the Importance of Respecting the Feelings of Parents/Caregivers
Butterfly Talk - Why is the Ribbon for EB (Epidermolysis Bullosa) Red and answers to other FAQ
How we wrap Nicky's wounds (Recessive Dystrophic Epidermolysis Bullosa)
Butterfly Talk - My Interview with RDEB mom Melissa Jaquez
Butterfly Talk - Basic 101 for New EB Parents (Epidermolysis Bullosa)
Nicky Zahorcak: Living with Epidermolysis Bullosa
Butterfly Talk - 8 Great Ways to Help Bereaved Parents
Butterfly Talk - Hope is Alive for RDEB! Consider joining a great trial!
Butterfly Talk - 5 Important Ways to Help Special Need Parents
Please Help Me Help Nicky
Butterfly Talk - 11 Helpful Tips for NEW Special Needs Parents
Butterfly Talk - My Favorite "Special Needs Parenting" Movies, plus a few specifically about EB!
Butterfly Talk - What is EB-101? My interview with Jodie Gillion from Abeona Therapeutics!
Butterfly Talk - October 15th is Pregnancy and Infant Loss Awareness Day
Butterfly Talk - Take Care of Yourself Mama!!!
Butterfly Talk - The Healing Power of Humor for Special Need Parents and their kids
Butterfly Talk - Bandages we use (Recessive Dystrophic Epidermolysis Bullosa)
Butterfly Talk - Depression Chat
Butterfly Talk - Coping Techniques
Butterfly Talk - The Bravery of patients with Epidermolysis Bullosa
Butterfly Child Quotes Part 2
Butterfly Child Quotes Part 1
Special Need Parenting Depression: The Struggle is Real!
Nicky's Life with Epidermolysis Bullosa (US Version)
Nicky's Life with Epidermolysis Bullosa (UK Version)