FD Foundation Inc

Fall 2025 FD/MAS Alliance Research Update

Faces of FD/MAS - Teddy's Story

2025 Team FD/MAS Research Update

Psychology in Pediatric Care

What is fibrous dysplasia, McCune-Albright Syndrome (FD/MAS)?

2022 FD/MAS Research Update

Dep. of Defense funding opportunities for studying fibrous dysplasia, McCune-Albright syndrome.

2023 Research Update

Fernando Fierro, UC Davis Poster Presentation

Julie Benthin, University of Copenhagen 2023 poster presenation

Melanie Le Grand, Eouard Herriot Hospital, Lyon 2023 Poster Presentation

Cooperation International FD/MAS Patient Advocacy Groups poster presentation 2023

Camryn Berry, Boston Children's Hospital

Juliette Jousse, Université Claude Bernard Lyon Poster Presentation 2023

Orthopedic Treatment of FD - Dr. Jason Malone at the FD/MAS Community Conference 2023

Practical Pain Assessment and Management - Dr. Naomi Brown

Advocacy Panel at the 2023 FD/MAS Community Conference

Bone pain and FD/MAS with Dr. Alison Boyce

FD/MAS 101

Endocrine Care for FD/MAS with Dr. Edward Hsiao

Craniofacial Care with Dr. Andrea Burke

A More Comprehensive Appreciation of the Quality of Life in FD/MAS – Dr. Juliette Jousse

Updates on the NIH trials Denosumab/Burosumab – Dr. Alison Boyce

Denosumab: Summary of the LUMC studies and The DeFiD trial – Dr. Natasha Appelman-Dijkstra

The Role of Hippo Signaling Alteration in the Pathogenesis of FD – Dr. Yingzi Yang

Clinical Research Roundtable at the 2023 FD/MAS Community Conference and ICFDMAS meeting

Registries -- Reports shared at the 2023 FD/MAS Community Conference and ICFDMAS meeting

Insights from FD/MAS Mouse Model – Dr. Biagio Palmisano

Salt Inducible Kinases in FD Pathogenesis – Dr. Marc Wein

Treatment for Fibrous Dysplasia: RANKL and Beyond – Dr. Xuefeng Zhao