HCU Network America
HCU Network America's mission is to help patients with Homocystinuria and related disorders manage their disease and to find a cure.
Our goal is to bring patients together and raise awareness.
2025 Low Protein New Parent Cafe Q&A
2025 Low Protein New Parent Cafe Presentation
Findings from the HCU Data Collection Program (May 2025)
How does longitudinal data help the HCU Community?
World Homocystinurias Awareness Day (WHAD) Panel 2025
World Homocystinuriasa Awareness Day: Hope is...
World Homocystinurias Awarness Day: Gabbi from Massahcusetts
World Homocystinurias Awareness Day: Brittany and Anniston from Mississippi
World Homocystinurias Awareness Day: Adam and Annette from Pennsylvania
World Homocystinurias Awareness Day: Brandon from Texas
World Homocystinurias Awareness Day: Mohammed from UAE
World Homocystinurias Awareness Day: Gwen from Ireland
World Homocystinurias Awarenes Day: Art and Miles from Ireland
HCU Network America Interview with Dr. Harvey Levy (Full Interview)
World Homocystinurias Awareness Day: Brooklyn from Quebec, Canada
World Homocystinurias Awareness Day: Gabriella from France
The Importance of Family Groups in HCU.
Advice to new patients
The Legacy of Dr. Harvey Levy
The Discovery of Cobalamin C Deficiency
Early Treatment and Diet
The History of Betaine Therapy in Homocystinuria
The History of B6 (Pyridoxine) Therapy in Homocystinuria
The First Patient Diagnosed with Homocystinuria through Newborn Screening
History of Treatments
Cobalamin C Deficiency, Patient & Parent Testimony - Adam and Annette
Classical Homocystinuria Patient Testimony - Will
The Early Days of Newborn Screening: The Guthrie Group
The history of classsical Homocystinuria and Marfan's syndrome
Cobalamin C Deficiency, Parent Testimony - Brandon