IPWSO
Welcome to the IPWSO YouTube channel! We're here with lots of video resources about Prader-Willi syndrome (PWS) for you to use as medical professionals, professional caregivers, allied healthcare workers, families and people with PWS.
Our vision is of a world where people with PWS and their families receive the services and support they need to fulfil their potential and achieve their goals. We work to unite the global PWS community to collectively find solutions to the challenges of the syndrome and to support and advocate for people with PWS and their families, PWS associations, and professionals who work with people with PWS.
Prader-Willi syndrome is a complex and rare neurodevelopmental condition. There is no cure for PWS but a supportive and empathetic environment with tailored care and treatment can reduce many of the challenges.
For more information please subscribe to our channel and visit our website: https://ipwso.org/
Understanding Intellectual Disability and PWS Across Cultures: Dr Parul Goel
Understanding Intellectual Disability and PWS Across Cultures: Sabika Shaban
Understanding Intellectual Disability and PWS Across Cultures: Dr. Carolina Cárdenas Vargas
Understanding Intellectual Disability and PWS Across Cultures: Dr. Molelekeng Sethuntsa
Talking to your child about Prader-Willi syndrome
Starting good habits early - Information for young Prader-Willi syndrome families - Liane Motta
Starting good habits early - Information for young Prader-Willi syndrome families - Tünde Liplin
Starting good habits early - Information for young Prader-Willi syndrome families - Constanze Lämmer
Having a sibling with Prader-Willi syndrome
Challenging behaviour in Prader-Willi syndrome
Building Safe and Supportive Homes for Individuals with Prader-Willi Syndrome
HERO: Phase 3 Trial for Treatment of Hyperphagia in PWS
Clinical Studies for Hyperphagia in Prader-Willi Syndrome
PFF-999 in Prader Willi Syndrome
Brooke Fuller Talk on Advocacy for People with Prader-Willi Syndrome
James Towle Talk on Advocacy for People with Prader-Willi Syndrome
Ken Yap interview on speaking up for yourself.
People with Prader-Willi syndrome in Bavaria send their best wishes for United in Hope 2025
Soleno Presentation | Bringing Global Treatments to Market
Embracing Cultural Diversity in Prader-Willi Syndrome Residential Services
IPWSO at ASPAE: Interviews with attendees of the 2025 Congress
European Medicines Agency’s medicine approval process
Challenges in accessing treatments for rare diseases in low- and middle-income countries
Prader-Willi syndrome, Capacity and Decision-Making - A view from Ireland
When Prader-Willi syndrome moves out: Our family's transition story
Huis Henri: first and only care home for Prader-Willi syndrome adults in South Africa
Friendships and Beyond: Navigating Relationships and Sexuality in PWS
Responsible parental care during transition to adulthood in people with Prader-Willi syndrome.
Prader-Willi syndrome 10 years out of the family home: Self determination - successes and challenges
A global investigation of the approval, availability, and affordability of GH treatment for PWS