Mackenzie's Mission
Mackenzie’s Mission is focused on making a difference in the fight against amyloidosis. Three areas anchor our work - closing the educational gap in the medical community through the Amyloidosis Speakers Bureau (ASB); empowering patients and caregivers through our resource library and education hub; and supporting multiple world class institutions who conduct research and run clinical trials on amyloidosis.
Founded by Mackenzie Boedicker in 2017 following her diagnosis at age 23 with AL amyloidosis.
Finding My Voice
Мнение экспертов об амилоидозе: трансплантация почек пациентам с AL-амилоидозом
The Power of Advocacy
What is the Relationship Between AL Amyloidosis and Multiple Myeloma?
Relapsing - What’s Next?
Expert Insights Into Amyloidosis: Utility of AI Review of Echo for Cardiac Amyloidosis Diagnosis
Isabelle: The Patient and the Advocate
The Systemic Amyloidoses vs Parkinson’s vs. Alzheimer’s
When the Caregiver Becomes the Patient
To HCPs: Strengthening the Doctor-Patient Relationship With the Black Patient Community
Cardiac Amyloidosis - AL and ATTR: Two Different Conditions
An AL Patient’s Journey Through Kidney Transplant and Organ Donation Advocacy
Finding My Community of Amyloidosis Patients
Expert Insights Into Amyloidosis: Ejection Fraction: It's Just a Fraction
ATTR Amyloidosis Treatments: Stabilizers and Silencers
Amyloidosis is No Longer a Death Sentence - There is HOPE
Expert Insights Into Amyloidosis: Weeds in the Garden: ABCs of AL Amyloidosis
Preparing Future Generations for an Inherited Disease ("green book")
Amyloidosis Genetic Counseling - What You Need to Know
When the Doctor Becomes an Amyloidosis Patient
Ideas on How to Stay Current on Research and Treatments
The Future for Patients with ATTR Cardiac Amyloidosis is Brighter
Expert Insights Into Amyloidosis: Do You Need a Heart Biopsy to Diagnose Cardiac Amyloidosis?
Going on Offense in the Fight to Make a Difference
Contemplating a Kidney Transplant
Closing the Medical Education Gap
Expert Insights Into Amyloidosis: Autologous Stem Cell Transplantation
Finding a “New Normal” Life
A Diagnostic journey - Uncovering A Family’s Disease
Expert Insights Into Amyloidosis: Harnessing Your Immune System