Rareminds
Specialist mental health support for the rare disease community.
Our team have been providing online counselling and wellbeing services for rare disease charities as independent psychological practitioners since 2014.
Our vision is that the psychological and emotional aspects of living with a rare condition are recognised as an integral part of rare disease care, with access to specialist quality services for all.
Our mission is to provide affordable, timely access to highly specialised counselling for the rare disease community, and campaign for recognition of the importance of specialist mental health support by informing policy, practice and promoting standards of excellence.
Find out more about the origins of Rareminds on our website: https://www.rareminds.org/about-us/.
Social listening as a research tool for understanding mental health and rare conditions
You and your doctors - Navigating healthcare and building relationships
Kelly's journey - Learning to self care as a carer
Coping with bereavement: Losing a child
What is mindfulness?
Rare leaders: Mental health in the workplace
Rare conditions & men's mental health
Glenn's story - Coming to terms with my rare condition
Talking about your rare condition
The importance of community when you have a rare condition
Experiences of pre-implantation genetic testing (PGT)
You and your medical team - living with a rare condition
Uncertainty while living with a rare condition
Wellbeing Hub for living with a rare condition
Mental wellbeing - Living with a rare condition
Talking to your child about your rare condition
Change and Loss - Living with a rare condition
Relationships - Living with a Rare Condition