CSF Leak Association
Welcome to CSF Leak Association – Raising Awareness of CSF Leaks
CSF (Cerebrospinal Fluid) leaks are rare but serious they cause disabling chronic headache, neurological symptoms, and life-changing challenges. Often misdiagnosed as migraine, POTS, Functional neurological disorder or even dementia. Our mission is to educate, support, and empower patients, families, and healthcare professionals through reliable information and real-life stories. We aim for all people with CSF leak symptoms to receive an accurate diagnosis and effective treatment to reduce suffering and harm and enable a return to normal life.
✅ We show:
• Patient experiences
• Expert interviews with neurologists, neuroradiologists, neurosurgeons
• Tips for diagnosis, treatment, and living with CSF leaks
• Awareness campaigns
💙 Why Subscribe?
Every view and share helps spread awareness of this under-recognised condition. Join us to learn, support, and make a difference.
🙏 Donate & Support: https://csfleak.uk/donate
Chronic Headache Mystery - Hidden Stream: The Untold Story of a CSF Leak
CSF Leak Association Webinar Series - 7: Patching in the management of spinal CSF leaks
CSF Leak Association Webinar Series - 6: Symptom Management in SIH
CSF Leak Association Webinar Series - 5: Surgery in the Management of CSF Leak Disorders
CSF Leak Association Webinar Series - 2: Clinical assessment and differential diagnosis of SIH
CSF Leak Association Webinar Series - 3: Imaging in the management of CSF leak disorders
CSF Leak Association Webinar Series - Webinar 1: Introduction to the patient journey
#theviewfromhere - living with a Spinal CSF Leak
PoTS v CSF leaks
John Jackson CSF leak update 2022
Leak Week 2022 Cranial CSF Leaks
Leak Week 2022 connective tissue disorders & CSF leaks
Russell Secker's experience with a CSF leak & SIH
What is Spontaneous Intracranial Hypotension (SIH)?
What is an iatrogenic spinal CSF leak?
What is a CSF leak?
Movement meditation
Leah Smith - Life with a Cerebrospinal Fluid (CSF) Leak
Deborah Lunnon - Life with a Cerebrospinal Fluid (CSF) Leak
Pete Marnick - Life with a Cerebrospinal Fluid (CSF) Leak
Donia Wheelan - Life with a Cerebrospinal Fluid (CSF) Leak
Chronic Headache - Life with a CSF Leak
John Jackson - Life with a Cerebrospinal Fluid (CSF) Leak
An Introduction to Cerebrospinal Fluid (CSF) Leaks
Jenni Pettican - Life with a Cerebrospinal Fluid (CSF) Leak
CSF Leaks Discussion - BBC Radio Scotland - Kaye Adams Show - 3 October 2017
CSF Leak News Report - BBC Reporting Scotland - 4 October 2017
Kilt Ride 2016 arrives at Dores, Inverness