International Rett Syndrome Foundation
The International Rett Syndrome Foundation (IRSF) is the leading research, family support, and advocacy organization for Rett syndrome. We fund trailblazing research seeking treatments and a cure; empowering support that helps families cope and offers hope; and increasing awareness of this rare disorder that can affect nearly every aspect of any individual’s life. We are transforming lives every day in our fight to treat and cure Rett, presenting the best opportunity to better the lives of families living with this devastating disorder.
Driven by Discovery: Dr. Sameer Bajikar on Building Momentum in Rett Research
Driven by Purpose: Dr. Ron Emeson on Hope & Rett Research
Driving Hope Through Progress for Rett Syndrome Families
2025 IRSF Scientific Meeting Highlights
Meeting the Moment: Laura Hameed on Accelerating Rett Syndrome Progress
RettEd: IEP Success: Championing Your Child’s Potential
RettEd: New Research, New Hope: The Male Rett Spectrum
Communication in Rett Syndrome, Course 1: A Review of the Basics and Consideration of Barriers
Communication in Rett Syndrome, Course 2: Principles of Assessment
Communication in Rett Syndrome, Course 3: Strategies for Intervention
RettEd: MECP2 and Rett Syndrome: How Do Your Child's Genes Fit into Gene Therapies?
RettEd: Epilepsy Treatments in Rett Syndrome feat. Robin Ryther, M.D., Ph.D.
RettEd: Transitioning with Confidence by Enhancing Communication in Academic Settings
RettEd: Physical Therapy Goals in Rett Syndrome and Benefits of Aquatherapy
Seamos la voz (Let's be the voice)
IRSF Parent Panel: My Trofinetide Clinical Trial Experience
Dr. Joe Horrigan is ALL IN for a Cure
Leslie is ALL IN for Heather
A Parent-to-Parent Conversation - What You Need to Know About DAYBUE (trofinetide), Part 3
Advocacy & Accessibility - What You Need to Know About DAYBUE (trofinetide), Part 2
What is DAYBUE? - What You Need to Know About DAYBUE (trofinetide), Part 1
Every Step of the Way
RettEd: Transitioning into Adulthood, Part 3 - Quality of Life Options by Real Life Families
Taysha Gene Therapies Rett Syndrome Community November 2022 Update
ALL IN for Sonia
RettEd Webinar: Q&A with Kathie Bishop, Chief Scientific Officer, Acadia Pharmaceuticals
RettEd: Transitioning into Adulthood Series, Part 2 - Lifecare Planning
Rett in Real Life: The Challenges
Let's go ALL IN
RettEd: What Comes Next? The FDA Regulatory Process from NDA to FDA Decision and Beyond