You and MDS
This channel is created for patients with MDS and their families and caregivers. It serves as an educational video resource with easy-to-understand animations, discussions featuring noted MDS experts, and patient interviews that will help you to understand key topics related to Myelodysplastic Syndromes.
Understanding Clinical Trials in Myelodysplastic Syndromes (MDS)
Including Everyone in Clinical Trials for Myelodysplastic Syndromes (MDS)
What is a clinical trial for MDS? Why are they important?
How are MDS clinical trials carried out? What should I expect?
What are the benefits of being in an MDS clinical trial? What are the risks?
How will my safety and privacy be protected if I join a clinical trial?
If I feel uncomfortable during a clinical trial am I obligated to participate?
How can I find an MDS clinical trial that is appropriate for me?
Why is diversity important in MDS clinical trials? What benefits do diverse clinical trials provide?
Why are some MDS patients not participating in clinical trials? What are the barriers to enrollment?
Понимание генетических мутаций при МДС
Терапия МДС на основе мутаций
Becky's story: What is your MDS gene mutation profile? When and how were you tested for it?
Which genetic mutations and cytogenetic changes have a more favorable response to MDS treatment?
Donna's story: What is your MDS gene mutation profile? When and how were you tested for it?
Holly's story: What is your MDS gene mutation profile? When and how were you tested for it?
Becky's story: What advice do you have for other MDS patients about genetic testing?
Donna's story: What advice do you have for other MDS patients about genetic testing?
Becky's story: How has your gene mutation profile affected your MDS treatment experience?
Donna's story: How has your gene mutation profile affected your MDS treatment experience?
Holly's story: How has your gene mutation profile affected your MDS treatment experience?
Becky's story: What has been the greatest success with your MDS treatment?
Donna's story: What has been the greatest success with your MDS treatment?
Holly's story: What has been the greatest success with your MDS treatment?
Becky's story: What has been the greatest challenge with your MDS treatment?
Donna's story: What has been the greatest challenge with your MDS treatment?
Holly's story: What has been the greatest challenge with your MDS treatment?
How does my genetic mutation profile impact the treatment of my MDS?
What are mutation-driven MDS treatments?