Alliance to Cure Cavernous Malformation
The Alliance to Cure Cavernous Malformation is an organization by and for those affected by cavernous malformation (cavernous angioma, cavernoma) and their loved ones, health professionals, and researchers. Our mission is to inform, support, and mobilize those affected by cavernous malformation and drive research for better treatments and the cure.
In May 2022, our organization changed its name to Alliance to Cure Cavernous Malformation. Videos created before this date use our original name, Angioma Alliance.
http://www.AllianceToCure.org/
Disclaimer: The Alliance to Cure Cavernous Malformation does not have control over the ads that YouTube selects, nor do we receive funds for advertising on our YouTube channel. We have no relationship with the entities advertised on our channel.
CCM Care: Neurology, Seizures and Hormonal Considerations Webinar
Alliance to Cure Cavernous Malformation Family Camp 2024
Alliance To Cure Family Weekend 2024
From Connie’s Kitchen Table to the Frontlines of a Cure
Navigating the Grocery Store: Webinar with Shannon O'Toole
Advocating for your Child with CCM in School
Movement Project Kick Off
Recursion Trial Update with CEO Chris Gibson, Ph.D.
Updates to the Care Consensus Guidelines & Atorvastatin Study Results with Dr. Issam Awad
Healing Beyond the Diagnosis: Understanding and Coping with Medical Trauma in Cavernous Malformation
Our Roadmap to a CCM Cure
End of the Year Message from Connie Lee
Breathing Underwater - A Webinar for Caregivers and the Rest of Us
Advocacy in Action: Navigating Medical, Legislative, and Beyond
Simple Science Webinar with Andrew Ressler, Ph.D
Pediatric Neurosurgery and Genetics Panel Discussion
Final Thoughts and Q&A with Dr. Awad - Patient Conference 2024
Cavernous Malformation Mythbusters with Dr. Flemming Dr. Zafar 2024 Patient Conference
Research Update Panel - Patient Conference 2024
2024 Patient Conference Highlights
Surgical Decision making, Dr Smith, 2024 Patient Conference
Webinar: Managing Seizures with Aria Fallah, MD, MS and Samuel S. Ahn, MD
Introducing Ovid & Graviton's New ROCK2 Inhibitor for CCM
Delaney Fisher Ph.D. Focused Ultrasound Update Webinar
Big Picture Updates on Guidelines, Trials and Biomarkers
Hosting a Successful Fundraiser
Heine Strong
Care Giver Support
Update with Connie Lee and Amy Akers
Esperanza's Cavernous Malformation Story