FSHDGlobalResearch
The FSHD Global Research Foundation is an Australian not-for-profit organisation dedicated to finding a treatment and cure for Facioscapulohumeral Dystrophy (FSHD).
The Foundation is currently funding a number of groundbreaking research projects around the world (with a particular encouragement of Australian based research) aimed at achieving these goals.
FSHD is one of the most common forms of muscular dystrophy and genetic hereditary diseases seen in skeletal muscle. Its prevalence varies from country to country depending on medical diagnostic competence. A 2010 report by Orphanet entitled 'Prevalence of rare diseases: A bibliographic study' estimates that FSHD affects seven in 100,000 people, while in some third world countries its prevalence is not recorded at all.
Learn more about our work at www.fshdglobal.org
2025 Sydney Chocolate Ball - CEO & Managing Director, Emma Weatherley and Ambassador, Zaharrah
2025 Sydney Chocolate Ball - Mitch Albert and his mum Rachael
2025 Sydney Chocolate Ball - Chairperson Natalie Cooney and Founder Bill Moss Speech
Mitch's story - Living with Early Onset FSHD
2025 Sydney Community Update Meeting
'Cure FSHD' Webinar Recording
What is the difference between FSHD1 and FSHD2?
2024 Sydney Chocolate Ball Highlights
Parliamentary Friends of FSHD 2025
'Cure FSHD' - Patient-led disease registry by FSHD Global Research Foundation
FSHD Global Research Foundation's Vision
Cure FSHD Clinical Trial Passport Program
Justin's story - Living with FSHD
2024 Sydney Chocolate Ball - Chairperson Natalie Cooney Speech
2024 Sydney Chocolate Ball - Guest Speaker Prof. Silvia Blemker, Springbok Analytics
2024 Sydney Chocolate Ball - Managing Director, Emma Weatherley
2024 Sydney Chocolate Ball - Zaharrah Priestley and her parents, Dimity and Mark
Justin Reid's Story - Parliamentary Friends of FSHD 2024
2023 Sydney Chocolate Ball Highlights
2023 Sydney Chocolate Ball - Managing Director, Emma Weatherley & Ambassador, Claire Anderson Speech
2023 Sydney Chocolate Ball - Founder Bill Moss AO and Chairman Natalie Cooney Speech.
2023 Sydney Chocolate Ball - Zaharrah's Story
2022 Sydney Chocolate Ball - Guest Speaker Prof. Peter Jones
2022 Sydney Chocolate Ball - Natalie Cooney Chairman Speech
2022 Sydney Chocolate Ball - Emma Weatherley Speech
2022 Sydney Chocolate Ball - Bill Moss AO Speech
FSHD Clinical Trial Readiness Program
2022 Sydney Chocolate Ball Clinical Trial Readiness Video
Zerocap NFT Auction Promo