Reverse Rett
Reverse Rett is a UK patient advocacy and research organisation working to speed the delivery of treatments and a cure for Rett Syndrome.
Our vision:
We want a world where children with Rett Syndrome are diagnosed quicker, earlier and more effectively than they are right now. A world where much more is known about the condition and factors that affect progression. A world where at every stage of development, treatments are available to counteract its symptoms. A world where we ultimately deliver a cure and enable people with Rett Syndrome to lead free and healthy lives.
Видео гала-концерта Reverse Straight в Глазго
The Future of Rett Syndrome: Dr Ram Kumar on emerging therapies
Reverse Rett Bitesize: Health Milestones Matter - Insights for Families Living with Rett Syndrome
Respiratory Problems and Their Management in Rett Syndrome: Professor Girish Sharma
Rett Syndrome & the Body’s Control System: Professor P J Santosh on What Families Need to Know
Essential Health Checks in Rett Syndrome: Dr Dan Lumsden on What Every Family Should Know
Reverse Rett LEAP Weekend 2025
Reverse Rett Bitesize: Ask Dr Dan
Rett syndrome across the lifespan
Reverse Rett Bitesize: Rett Syndrome – From Genes to Symptoms
The Art of Fundraising with Andy Stevenson
An easy Intro to Gene Therapy for Rett
'Epilepsy in Rett Syndrome: Addressing the unmet need'- with Dr Jay Shetty
'How the CIPP Rett centre has advanced care for patients with Rett' Professor Paramala Santosh
Dr Aimee Donald's LEAP Day talk on learnings from other children's gene therapy trials
The Gene Therapy Q&A panel from LEAP Day
“Introducing TSHA 102” with Chelsea Karbocus and Dr Daniel Lumsden [LEAP day]
'An introduction to gene therapies' by Dr Daniel Lumsden [LEAP day]
Mya's Story
'A short history of MeCP2 research in the Bird lab' with Jacky Guy, PHD: LEAP Day Talks
Rett syndrome: Family Perspectives 2024
CIPP Rett Centre's Dr Jatinder Singh talks gene therapy - Episode 6 of the Reverse Rett Bitesize
Dr Jay Shetty talks gene therapy and seizures - Episode 5 of the Reverse Rett Bitesize
Reverse Rett Bitesize Soundbites: 2. Addressing Scoliosis and impact on lungs
Taysha Gene Therapies lets us look inside their program - Episode 4 of the Reverse Rett Bitesize
The Art of Fundraising with Andy Stevenson
Rachael Stevenson gives you the Guide of Gene Therapies - Episode 1 of the Reverse Rett Bitesize
Why you should sign up for the Rett Registry UK