AAMDSIF
The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and other related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world.
AA&MDSIF offers free patient education materials, virtual support groups, conferences, and webinars for patients, caregivers, and health professionals.
In addition, AA&MDSIF funds grants to further research in finding a cure for aplastic anemia, MDS and PNH.
401 N. Washington St., Ste 430
Rockville, MD, 20850
(800) 747-2820
(301) 279-7202
AAMDSIF Resources for Health Professionals
Transplant for MDS in Older Adults - with Mariam Nawas
High Risk MDS Session Summary with Hetty Carraway
PNH Session Summary for Patients with Phil Scheinberg
MDS Session Summary for Patients - with Olatoyosi Odenike
Aplastic Anemia Session Summary for Patients with expert, Emma Groarke
AML Session Summary for Patients with Mikkael Sekeres - Secondary AML and Transplantation
Pediatric Nurse Finds her Way through Aplastic Anemia Treatment
MDS and Keeping Hope - Donna's Story
Long, Hard, Road to Diagnosis - Shaquilla's Story
Podcast for Patients: In Treatment for PNH - Shane's Story
Treatments for MDS and Secondary AML Uma Borate with Jacqueline Garcia
Understanding Low Risk MDS 2021 Fall Patient Family Conference
Understanding Transplant 2021 Winter Patient Family Conference
Emotional and Health Impact of Caregiving 2021 Winter Patient Family Conference
Understanding PNH 2021 Winter Patient Family Conference
Understanding Higher Risk MDS and the Transition to AML
Understanding Low Risk MDS 2021 Winter Patient Family Conference
Understanding Aplastic Anemia 2021 Winter Patient Family Conference
Transplantation for Older MDS Patients
Pediatric PNH Diagnosis and Treatment
Transplant for Older Patients with MDS
Ocular GVHD Diagnosis and Treatment
Cutaneous Graft versus Host Disease - Diagnosis and Treatment
Clonal Evolution in Aplastic Anemia
Living With Bone Marrow Failure Diseases - San Antonio PFVC
Management of Aplastic Anemia - San Antonio P&FVC
Transplant - 2022 San Antonio PFVC
PNH - 2022 San Antonio P&FVC
MDS/MPN Overlap - 2022 San Antonio PFVC