Everything ALS

This project is inspired by patient advocates as a tribute to our loved ones. Our mission is to support efforts to care for ALS patients and work to find a cure by creating a platform for direct engagement with patients, caregivers, advocates, researchers and technology innovations. Our amazing team is committed to Care to Cure for ALS. We take our convictions and turn them into action. EverythingALS is functioning under Peter Cohen Foundation (PCF), a non-profit 501(3)c organization. EIN 84-3055901

Palliative Care for ALS: What is it? How can it help? How to access it?

Palliative Care for ALS: What is it? How can it help? How to access it?
Updates on ALS Clinical Trials from Regeneron and VectorY

Updates on ALS Clinical Trials from Regeneron and VectorY
Signals from the Outer Limits - What I've Learned from Slow Progressors and ALS Reversals

Signals from the Outer Limits - What I've Learned from Slow Progressors and ALS Reversals
ALS BioBanking in the 21st Century

ALS BioBanking in the 21st Century
Genetics and ALS: What New Discoveries Mean for You and Your Family with Jennifer Roggenbuck MS, CGC

Genetics and ALS: What New Discoveries Mean for You and Your Family with Jennifer Roggenbuck MS, CGC
Demo AI Assisted PRO chatbot

Demo AI Assisted PRO chatbot
Tracking the Invisible: How Science Is Revealing ALS's Environmental Roots with Dr. Eva Feldman

Tracking the Invisible: How Science Is Revealing ALS's Environmental Roots with Dr. Eva Feldman
Barriers to ALS Therapy Development: Forging a Path Through with Dr. Shafeeq Ladha

Barriers to ALS Therapy Development: Forging a Path Through with Dr. Shafeeq Ladha
Is ALS a recoverable disease? Insights from Dr. Brett Morrison

Is ALS a recoverable disease? Insights from Dr. Brett Morrison
Breathing in ALS: Insights from a Clinical Research Program for Respiratory Care in ALS

Breathing in ALS: Insights from a Clinical Research Program for Respiratory Care in ALS
The ALS Gene Carrier Study | Detecting Early Motor & Speech Changes in ALS

The ALS Gene Carrier Study | Detecting Early Motor & Speech Changes in ALS
Building the Motor Pathway In Vitro to Understand ALS with Dr. Arens Taga

Building the Motor Pathway In Vitro to Understand ALS with Dr. Arens Taga
ALS Expert Talk: Preserving nerve-muscle contacts to battle ALS

ALS Expert Talk: Preserving nerve-muscle contacts to battle ALS
Accelerating ALS Care andResearch through Collaborative Networks: Insights from NEALS and Beyond

Accelerating ALS Care andResearch through Collaborative Networks: Insights from NEALS and Beyond
Neuromuscular Rehabilitation and ALS Recovery: Update on Tofersen for ALS

Neuromuscular Rehabilitation and ALS Recovery: Update on Tofersen for ALS
Fast-Tracking Discovery in ALS:Collaboration, Innovation, and Open Science

Fast-Tracking Discovery in ALS:Collaboration, Innovation, and Open Science
Clues from Epidemiology to ALS Prevention and Treatment with Dr. Alberto Ascherio

Clues from Epidemiology to ALS Prevention and Treatment with Dr. Alberto Ascherio
ALS Natural History: How to Turn Real-World Experience into Real Progress in #ALS Research.

ALS Natural History: How to Turn Real-World Experience into Real Progress in #ALS Research.
Brain Health and ALS with Dr. Hande Ozdinler

Brain Health and ALS with Dr. Hande Ozdinler
Nutritional Considerations in ALS: Is there a role for nutritional guidance in the treatment of ALS?

Nutritional Considerations in ALS: Is there a role for nutritional guidance in the treatment of ALS?
CNM-Au8 Survival, NFLBiomarker, and Phase 3Update with Mr. Rob Etherington and Dr. MarjanSepassi

CNM-Au8 Survival, NFLBiomarker, and Phase 3Update with Mr. Rob Etherington and Dr. MarjanSepassi
Repeat Associated Non-AUG (RAN) Proteins as Therapeutic Targets for C9orf72 ALS/FTD

Repeat Associated Non-AUG (RAN) Proteins as Therapeutic Targets for C9orf72 ALS/FTD
Revolutionizing ALS Research: ALL ALS & You!

Revolutionizing ALS Research: ALL ALS & You!
Three Molecular Subtypes of ALS: #ExpertTalk with Dr. Molly Gale Hammell

Three Molecular Subtypes of ALS: #ExpertTalk with Dr. Molly Gale Hammell
#ExpertTalk: Targeting an Endogenous Retrovirus as a Therapeutic Approach to ALS

#ExpertTalk: Targeting an Endogenous Retrovirus as a Therapeutic Approach to ALS
#ExpertTalk: Caring for People with ALS — Addressing Cognitive Difficulties | Dr. Cathy Hoerth

#ExpertTalk: Caring for People with ALS — Addressing Cognitive Difficulties | Dr. Cathy Hoerth
#ExpertTalk: CNM-Au8 Long-term Evidence & EAP Program Update | Rob Etherington & Dr. Marjan Sepassi

#ExpertTalk: CNM-Au8 Long-term Evidence & EAP Program Update | Rob Etherington & Dr. Marjan Sepassi
Shifting the PARADIGM:PrimeC, an Oral Candidate for ALS

Shifting the PARADIGM:PrimeC, an Oral Candidate for ALS
2025: New therapies and approaches in ALS : gene, small molecules, repair, and more

2025: New therapies and approaches in ALS : gene, small molecules, repair, and more
What's Old is New Again:Role of the Innate Immunity and its Biomarkers in ALS

What's Old is New Again:Role of the Innate Immunity and its Biomarkers in ALS