Getting Diagnosed with a Rare Cancer: Myelofibrosis | Mary’s Story | The Patient Story

Mary L. is a retired career nurse who now works as a CEO for a non-profit. The last few years of her life have changed course, and it all began with symptoms of something that remained undiagnosed for months and months. Her first red flags were fatigue and dizziness, both of which were extreme.

In this segment, Mary shares more about what finally got her to her diagnosis of myelofibrosis, including misdiagnoses of other myeloproliferative neoplasms (MPNs) like essential thrombocythemia and polycythemia vera. She also talks about having to be her best advocate, switching doctors when she felt it was important.

Thank you for sharing your story, Mary!

In this Series: Our 3-part series with Mary covers everything from getting diagnosed with a rare cancer (this video), the ups and downs of going through myelofibrosis treatment, including Pegasys and hydroxyurea, and the impact of living with a rare cancer.

Videos:
Getting diagnosed with a rare cancer (this video)
Myelofibrosis Treatment & Side Effects (Pegasys, Hydroxyurea) :    • How I Got Through Cancer Treatment & Side ...  
Living with a rare cancer (myelofibrosis):    • Living with a Rare Cancer (Myelofibrosis) ...  

Full story & transcript → Updated Soon at www.ThePatientStory.com

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The interview has only been edited for clarity.
Contents of this video:
00:00 - Intro
00:45 - TITLE: Mary's Introduction
02:32 - TITLE: The 1st symptoms
05:05 - TITLE: Feeling Vertigo
07:12 - TITLE: Waiting for results
09:04 - TITLE: Dealing with the wait to start treatment
14:51 - TITLE: Seeking a second opinion
16:50 - TITLE: Guidance on the path to diagnosis and treatment
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