Let's Talk About CVI

This session covers cerebral/cortical Visual Impairment (CVI), our current understanding and research, CVI visual behaviors, when to suspect CVI, and next steps.

SPEAKER:

Lacey Smith
Perkins School for the Blind
CVI Parent Community Manager at CVI Now

Lacey is the CVI Parent Community Manager at CVI Now and previously worked as a CVI Project Coordinator for the CVI Center at Perkins School for the Blind. Lacey has worked closely with young children with visual impairments, multiple disabilities, rare diseases, and dual sensory loss providing consult and support to the student, families, and their teams. Lacey has a Bachelor’s in General Studies with a Concentration in Early Childhood Education from the University of Kansas, a Master’s in Education as a Teacher of Students with Visual Impairments, (TVI) from UMass Boston, and a Graduate Certificate in Cortical/Cerebral Visual Impairment (CVI) also achieved at UMass Boston. Lacey’s interest was inspired by her 13-year-old daughter’s diagnosis of CVI and she continually strives to learn more and support families with all she has learned along her own journey.

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Our mission is to enhance the lives of children who need neurosurgery to treat their seizures. We do this through our impactful programs, services, and research before, during, and after surgery.

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