Disablitiy equipment - what's in all the bags?
Автор: ParentXP
Загружено: 2025-05-20
Просмотров: 10654
My daughter with cerebral palsy takes a lot of equipment with her everywhere she goes. There is the water pump, the feeding tube, the suction machine, her epilepsy rescue medicines, AFOs, hand splints, sleep system and much more.
I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.
Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.
On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other. And I share what life is like for a single, midlife mom who always juggles too much. Organisation tips, perimenopause, and coparenting.
Elin’s medical procedures playlist: https://bit.ly/2HhKFsE
Tips and tricks playlist: https://bit.ly/2ugfoy1
Come and join us on other social media platforms:
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Facebook: / parentxp
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