When Loss Becomes Purpose: Megan Schomer's Mission with Rays for Rare | Ever Onward Ep. 83

When Megan Schomer learned her newborn son Corwyn had a combination of three ultra-rare brain malformations, her world was forever changed. Despite no clear diagnosis and no treatment options, Megan and her family chose to live fully, making the most of every moment of Corwyn’s short life. In this deeply moving episode, Megan opens up about the medical journey that followed — one filled with constant seizures, around-the-clock care, and an unshakable commitment to creating joy, even in the face of heartbreaking realities.

After Corwyn passed away at just four and a half years old, Megan transformed her grief into purpose. She founded Rays for Rare, a nonprofit that provides meaningful, non-diagnosis-specific support for families caring for medically fragile children — because most of that care doesn’t happen in hospitals, but in homes. From house cleaning and lawn care to emotional support groups and sibling events, Rays for Rare shines light into the lives of families often overlooked by traditional systems.

Today, Megan leads the organization full time, serving over 200 families across the Treasure Valley, and raising awareness for pediatric palliative and hospice care. She’s received numerous honors for her work, but her impact goes far beyond awards — it lives in the stories of families who finally feel seen, supported, and less alone.

Tune in as Megan shares her path from real estate to nonprofit leadership, what it means to choose quality of life over quantity, and how small, compassionate gestures can radically change lives. Whether you’re looking to understand the world of medically complex parenting or find a way to help, this conversation is both heart-wrenching and hope-filled.

Learn more, get involved, or donate at raiseforrare.org.