Ep74: Pulse138: DC Fly In Applications, Mental Wellness, Save the Dates for 2026

The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 



24 Hour Crisis Line: 941-312-0400



 



Events | Fundraisers



D.C. Fly-In 2026 - Prader-Willi Syndrome Association | USA (https://www.pwsausa.org/events/dc-fly...)



2026 Residential Providers Conference - Prader-Willi Syndrome Association | USA (https://www.pwsausa.org/event/2026-re...)



2026 Moms' Retreat - Prader-Willi Syndrome Association | USA (https://www.pwsausa.org/event/2026-mo...)



2027 PWSA | USA United in Hope National Convention - Prader-Willi Syndrome Association | USA (https://www.pwsausa.org/event/2027-pw...)



PWSA Fundraising Pages - Campaign (https://www.classy.org/campaign/pwsa-...)



Spotlight on PWS



Share Your Story - Prader-Willi Syndrome Association | USA (https://www.pwsausa.org/get-involved/...)



Angel Drive



Hope in Action: Where Community Becomes Family — Annie’s Story (   • Hope in Action: Where Community Becomes Fa...  )



Hope in Action - YouTube (   • Hope in Action  )



Podcast



Ep73: Stacy's End of Year Message | PWS United (https://pwsunited.podbean.com/e/ep73-...)



Advocacy



Rare Disease Week - EveryLife Foundation for Rare Diseases (https://everylifefoundation.org/rare-...)



Rare Disease Week 2024 (   • Rare Disease Week 2024  )



Family Support



Sibling Spotlight: Ella Frazier’s Heart for Service - Prader-Willi Syndrome Association | USA (https://www.pwsausa.org/sibling-spotl...)



Ask Nurse Lynn: PWS BMI Ranges - Prader-Willi Syndrome Association | USA (https://www.pwsausa.org/ask-nurse-lyn...)



PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA (https://www.pwsausa.org/pws-rare-awar...)



Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA (https://www.pwsausa.org/ask-nurse-lynn/)



Research



PWSA | USA’s 2025 Research Year in Review - Prader-Willi Syndrome Association | USA (https://www.pwsausa.org/pwsa-usas-202...)



Announcements/Resource Spotlight



Exercise, Movement, and Mental Health - Prader-Willi Syndrome Association | USA (https://www.pwsausa.org/exercise-move...)



 



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