Belfast girl, 4, diagnosed with rare disease which could lead to 'childhood dementia'

The parents of a young East Belfast girl diagnosed with a rare degenerative disease described as leading to 'childhood dementia' have said their focus is on making happy memories together and spending as much time with her as possible.

When Edie Dorrian was born in January, 2021, happy and full of life, her proud parents George and Lauren never imagined the difficulties that she would face in just a few years time.

For the first few years of her life George and Lauren did not suspect that Edie had any issues other than possible autism due to her being non-verbal, and she was a very lively young girl who loved running around her house and garden, playing with her older brother and parents.

Video: Harry Bateman

________________________________________________________________________

Have you downloaded the Belfast Live app?

Search for Belfast Live in the Google Play store: https://play.google.com/store/apps/de...

Search for Belfast Live in the App Store if you're on iOs: https://apps.apple.com/ie/app/belfast...

SUBSCRIBE to other Belfast Live social channels:

TWITTER |   / belfastlive  
INSTAGRAM |   / belfastlive  
FACEBOOK |   / belfastliveonline  
WEBSITE | https://www.belfastlive.co.uk/

You can get daily news updates straight to your inbox via our daily newsletter - sign up here:
https://www.belfastlive.co.uk/newslet...

GET IN TOUCH WITH BELFAST LIVE
 
Email: [email protected]
Got a story? Call us on 028 90568000