Advancing What's Next in Long QT Syndrome Care
Автор: SADS Foundation
Загружено: 2025-06-24
Просмотров: 194
Advancing What's Next in Long QT Syndrome Care (sponsored by Thryv Therapeutics)
Part of the Living with SADS Webinar Series
🔑 Key Takeaways:
Genetic testing plays a crucial role in managing Long QT Syndrome (LQTS) and guiding treatment decisions.
Genotype-specific care is becoming increasingly important, especially for enrollment in clinical trials.
Introduction to myQTwave, a new observational study launching in 2025 to gather real-world insights from LQTS patients.
Preview of an upcoming clinical trial for patients with LQT2, sponsored by Thryv Therapeutics, including anticipated timelines.
New treatment research targeting the SGK1 enzyme, showing potential to benefit individuals with LQTS.
Live Q&A offered attendees a chance to ask personalized questions directly to clinical and research experts.
🎙 Featured Speakers:
Dr. Amy Sehnert, MD
Cardiologist and Chief Medical Officer at Thryv Therapeutics, leading clinical research on SGK1 inhibitors for LQTS.
Dr. Sam Sears, PhD
Clinical health psychologist and professor specializing in the quality of life and psychological care of patients with inherited arrhythmias.
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