What It Takes For A Severe ME/CFS Patient To Leave The House

What It Takes For A Severe ME/CFS Patient To Leave The Bed, Room or House

My name is Whitney Dafoe and I have severe ME/CFS. This is a bit of my story and a brief picture of my life.

Please visit my website for more information about ME/CFS and inspiration for how to survive ME/CFS:

ℹ️ BASIC INFORMATION ABOUT ME/CFS ℹ️

✏️ My ME/CFS Blog:
https://www.whitneydafoe.com/mecfs

❓What is ME/CFS?
https://www.whitneydafoe.com/mecfs/wh...

👤 My Story:
https://www.whitneydafoe.com/mecfs/my...

📄 ME/CFS Resources:
https://www.whitneydafoe.com/mecfs/re...

🙏 Donate to ME/CFS Research:
https://www.whitneydafoe.com/donate

Facebook:
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Instagram:
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Twitter:
  / dafoewhitney  

Thank You
Whitney Dafoe

Chronic Fatigue Syndrome/Myalgic Encephalomyelitis affects 4 million Americans. Twenty-five percent are estimated to be severely affected, being bedridden with little to no functioning. This population has been shown in studies to have the lowest functioning of any chronic illness, comparable to end-stage AIDS or end-stage renal failure. There is no known cause or cure though researchers have found unique abnormalities in the immune system, circulation system, ATP (energy) production, physical response to exercise, and autopsy findings report dorsal root ganglionitis - a type of inflammation of the spinal cord. Some people improve with time while others are bed-bound for decades. It is estimated that 4% of those with severe ME/CFS have any type of recovery.

To die of this illness is atypical; however, to hover in an in-between state where one experiences a 'living death' for years or decades is quite typical. 

Despite the ravages of ME/CFS, it is one of the least funded illnesses.  Multiple Sclerosis is thought to be on average less severe in it's impact on patients' quality of life, and effects half the number of people. Yet it receives 100 million dollars per year from the Government for research while ME/CFS received 15 million last year. HIV receives 28 billion$ per year.  With so little funding, there is no hope for the millions of people suffering from this illness. 

Please consider donating to The Open Medicine Foundation (OMF) for ME/CFS research.

Together we can end ME/CFS.

https://www.omf.ngo/donate