Rare is Proud! - Andy Bolan's message for Rare Disease Day 2021
Автор: ProQR Therapeutics
Загружено: 2021-02-22
Просмотров: 474
This year's Rare Disease Day is coming up on Sunday February 28th. Leading up to this important awareness event Andy Bolan shares what inspires him in working in the field of rare Inherited Retinal Diseases. Andy is our Associate Director Patient & Medical Community Engagement, at ProQR Therapeutics.
Check out the Rare Disease Day website at https://www.rarediseaseday.org and learn more about the people living with rare disease, the high unmet medical need and how to get involved as an advocate.
You can reach out to Andy if you want to know more about his work: [email protected]
The event footage from this video is taken from the Eye on the Future Forum that took place on 2020's Rare Disease Day in Paris. The EFF brings together key stakeholders in developing therapies for inherited retinal diseases. Find out more at https://eyeonthefutureforum.com/
If you want to learn more about the therapies ProQR is developing for rare genetic diseases, this is a good place to start: https://www.proqr.com/pipeline
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