2025 CTF National Ambassador Leanna Scaglione

On Monday, November 18, during the Children’s Tumor Foundation National Gala, Leanna Scaglione was named the Foundation’s 2025 National Ambassador. This award is bestowed upon a courageous individual living with NF and recognizes their efforts to further the Foundation's goals of research, public awareness, and patient support. Leanna lives with NF2-related schwannomatosis and joined the CTF NF Endurance Team in 2022. She has since represented CTF in numerous on-camera media appearances and live events.

The Children’s Tumor Foundation (CTF) is the drug discovery engine for NF. Everything we do is to bring treatments to patients as we work toward a cure. By connecting patients, doctors, scientists, and pharma, we drive treatments, advance care, and deliver results for millions affected by neurofibromatosis or schwannomatosis, collectively referred to as NF. Our patient-first collaborative approach accelerates drug development and brings life-changing therapies to patients faster, driven by our mission to end NF.

What is NF?
NF refers to a group of genetic conditions that cause tumors to grow on nerves throughout the body. NF affects 1 in 2,000 births and may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, or cancer. NF affects all races, ethnic groups, and genders equally. The types of NF include neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2 (NF2).

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