Imagine living with a rare disease that only 20 other people in the whole country has - that is life with Hereditary Angioedema (HAE), recounts Yong Hao.
With misdiagnoses and even a near-death experience with airway swelling, Yong Hao shares his journey of living with HAE and how he takes this diagnosis with pride - pouring his time and energy back into the community to raise awareness in hopes that there will be more options for treatment and cure in the future, especially for his daughter who has the chance of inheriting this condition.
Timestamp:
0:00 - Introduction
0:33 - What was life like before the first episode of angioedema?
1:36 - Did you know you had Hereditary Angioedema?
5:14 - Tell us the story of your diagnosis of HAE
9:04 - What treatment are you taking for HAE?
11:59 - What is the worst HAE attack you've experienced?
19:21- What kind of support do you have from friends and family when it comes to managing your condition?
21:33 - What are the things that motivate you?
Special thanks to Rare Disorders Society Singapore RDSS for their support in making this video possible.
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