Vascular EDS Conference 2017: VEDS: A Parent's Perspective by Victoria Whatton
Автор: Annabelle's Challenge Vascular EDS Charity
Загружено: 2017-06-23
Просмотров: 584
Victoria Whatton, London UK, talks about Vascular EDS from a parent's perspective at the world's first conference for Vascular EDS jointly hosted by Annabelle's Challenge and The Ehlers-Danlos Support UK.
The conference took place at the Village Hotel, Manchester Bury on May 6th & 7th 2017 attended by medical professionals, patients and family members.
Vascular EDS is a life threatening connective tissue disorder that affects all tissues, arteries and internal organs making them extremely fragile. Patients are at risk of sudden arterial or organ rupture. Vascular EDS (previously known as Ehlers-Danlos type IV) is a rare type of Ehlers-Danlos syndrome caused by an alteration, also known as a mutation in the COL3A1 gene.
For further information: www.VascularEDS.org
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