Choice and Voice: Family Perspectives on Decision-making for Children with Medical Complexity

In this Complex Care Journal Club podcast episode, Dr. Kate Nelson discusses a qualitative study exploring decision-making skills developed by family caregivers of children with medical complexity. She describes the impact of contextual factors and relationships within care teams on decision-making, family partnership in research, and the next steps from this work.

SPEAKER
Kate Nelson, MD, PhD
Staff Pediatrician, Paediatric Advanced Care Team
The Hospital for Sick Children
Scientist
SickKids Research Institute
Assistant Professor
University of Toronto

HOST
Kathleen Huth, MD, MMSc
Pediatrician, Complex Care Service, Division of General Pediatrics
Boston Children's Hospital
Assistant Professor of Pediatrics
Harvard Medical School

DATE
Initial publication date: August 5, 2024.

JOURNAL CLUB ARTICLE
Finlay M, Chakravarti V, Buchanan F, Dewan T, Adams S, Mahant S, Nicholas D, Widger K, McGuire KM, Nelson KE. Learning to Trust Yourself: Decision-Making Skills Among Parents of Children With Medical Complexity. J Pain Symptom Manage. 2024 May 28:S0885-3924(24)00792-9. doi: 10.1016/j.jpainsymman.2024.05.023. Epub ahead of print. PMID: 38810951.

TRANSCRIPT
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CITATION
Nelson K, Huth K. Choice and Voice: Family Perspectives on Decision-making for Children with Medical Complexity. 8/2024. OPENPediatrics. Online Podcast.    • Choice and Voice: Family Perspectives on D...  .