To successfully deliver life-changing medicines, it is crucial that patients are treated as equal partners in the planning and delivery of clinical development. Bionical Emas are working with patient advocacy groups to ensure patients' voices are heard and that trials and programmes are specifically tailored to the needs of each rare disease community.
To watch the full programme, please visit raredisease.org.uk/careforrare
Rare Disease UK is the official organiser of Rare Disease Day in the UK. It is a campaign run by the charity Genetic Alliance UK, the largest alliance of organisations supporting everyone affected by genetic, rare and undiagnosed conditions in the UK.
#CareForRare #RareDiseases #RareDiseaseDay2023
Поделиться в:
Доступные форматы для скачивания:
Скачать видео mp4
Информация по загрузке:
Скачать аудио mp3
Похожие видео
array(10) {
[0]=>
object(stdClass)#4216 (5) {
["video_id"]=>
int(9999999)
["related_video_id"]=>
string(11) "y4iq31Aj9V0"
["related_video_title"]=>
string(66) "Medscape Education Global – Together Caring for Rare Disease"
["posted_time"]=>
string(21) "2 года назад"
["channelName"]=>
string(19) "Genetic Alliance UK"
}
[1]=>
object(stdClass)#4189 (5) {
["video_id"]=>
int(9999999)
["related_video_id"]=>
string(11) "PfAMiFda3DY"
["related_video_title"]=>
string(58) "Coordinating Care – Together Caring for Rare Disease"
["posted_time"]=>
string(21) "2 года назад"
["channelName"]=>
string(19) "Genetic Alliance UK"
}
[2]=>
object(stdClass)#4214 (5) {
["video_id"]=>
int(9999999)
["related_video_id"]=>
string(11) "w3nKlAuhbxs"
["related_video_title"]=>
string(153) "Настоящая причина диабета 2 типа не сахар и углеводы. В чем причина и как справиться."
["posted_time"]=>
string(21) "7 дней назад"
["channelName"]=>
string(12) "doctorpetrik"
}
[3]=>
object(stdClass)#4221 (5) {
["video_id"]=>
int(9999999)
["related_video_id"]=>
string(11) "ybdmdMyHsmA"
["related_video_title"]=>
string(72) "Meniscal Tear? Everything you need know! (symptoms surgery and recovery)"
["posted_time"]=>
string(21) "2 года назад"
["channelName"]=>
string(15) "Complete Physio"
}
[4]=>
object(stdClass)#4200 (5) {
["video_id"]=>
int(9999999)
["related_video_id"]=>
string(11) "qtTvjfCjuXA"
["related_video_title"]=>
string(116) "Пей Это Каждый День и Прощай Жир в Печени! (Доктор Дэвид Синклер)"
["posted_time"]=>
string(21) "1 день назад"
["channelName"]=>
string(31) "Скрытое Здоровье"
}
[5]=>
object(stdClass)#4218 (5) {
["video_id"]=>
int(9999999)
["related_video_id"]=>
string(11) "y_Hin-Xfits"
["related_video_title"]=>
string(108) "Как живут люди с синдромом Аспергера. Документальный фильм"
["posted_time"]=>
string(21) "3 года назад"
["channelName"]=>
string(39) "Человеческие истории"
}
[6]=>
object(stdClass)#4213 (5) {
["video_id"]=>
int(9999999)
["related_video_id"]=>
string(11) "KK6gsN3qDrA"
["related_video_title"]=>
string(52) "Volv Global – Together Caring for Rare Disease"
["posted_time"]=>
string(21) "2 года назад"
["channelName"]=>
string(19) "Genetic Alliance UK"
}
[7]=>
object(stdClass)#4223 (5) {
["video_id"]=>
int(9999999)
["related_video_id"]=>
string(11) "aiAL-J5nL6g"
["related_video_title"]=>
string(76) "Expat Clinic | UK Tax Year 25/26: What Expats and Non-Residents Need To Know"
["posted_time"]=>
string(25) "2 месяца назад"
["channelName"]=>
string(18) "Experts for Expats"
}
[8]=>
object(stdClass)#4199 (5) {
["video_id"]=>
int(9999999)
["related_video_id"]=>
string(11) "V3d6uoNqdaY"
["related_video_title"]=>
string(162) "РЕШЕТНИКОВ: "ЭКОНОМИКА "НА ГРАНИ"/ ЧИНОВНИКОВ ПРОРВАЛО НА ПМЭФ/ ИРАН И ЦЕНЫ НА НЕФТЬ. Милов"
["posted_time"]=>
string(23) "9 часов назад"
["channelName"]=>
string(19) "Майкл Наки"
}
[9]=>
object(stdClass)#4217 (5) {
["video_id"]=>
int(9999999)
["related_video_id"]=>
string(11) "-Vd1aesu1lY"
["related_video_title"]=>
string(102) "Арестович: Украина и Россия перепутали врагов. @yulialatynina71"
["posted_time"]=>
string(19) "2 дня назад"
["channelName"]=>
string(17) "Alexey Arestovych"
}
}
