OsteoBites S1 Ep11: Alanna Church, MD and Christina Ip-Toma, MIB Testing & Research Directory
Автор: Osteosarcoma: MIB Agents Osteosarcoma Alliance
Загружено: 2020-06-18
Просмотров: 172
MIB Agents Osteosarcoma Webinar Series: Alanna Church, MD of Boston Children's and Harvard Medical School and Christina Ip-Toma MIB Testing Research Directory Lead talk about navigating the Testing & Research Directory to help inform a personal treatment plan or to inform research.
Christina Ip-Toma, MIB OsteoWarrior Parent and Alanna Church, MD Pathologist at Dana Farber & Harvard Medical School worked together with Matteo Trucco, MD, Katie Janeway, MD, Alejandro Sweet-Cordero, MD, Will Parsons, MD, Joshua Schiffman, MD, Ines Lohse, PhD and Al Cornelius, MD to bring this important document to you as an essential decision-making document. OsteoParents Karen Davis and Caroline Rothermel Adams contributed early work to bring about this work.
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Guest Information:
Alanna Church, MD is the Associate Director for Molecular Pediatric Pathology Laboratory (LaMPP)
Staff Pathologist, Department of Pathology
Boston Children's Hospital
Assistant Professor of Pathology
Harvard Medical School
Christina Ip-Toma
MIB Agents Testing & Research Directory
OsteoWarrior Mom
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Panelists:
Maeve Smart is an MIB Agents Jr. Board Member and and OsteoWarrior
Amanda Levine is the founder and manager of the Closed FaceBook Group for osteosarcoma and a Patient Advocate
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Hosted by Ann Graham, MIB Agents Founder & President.
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MIB Agents is a leading pediatric osteosarcoma nonprofit dedicated to Making It Better for our community of patients, caregivers, doctors, and researchers with the goal of less toxic, more effective treatments and a cure for this aggressive bone cancer.
What We Do
PROGRAMS:
✨ End-of-Life MISSIONS
✨ Gamer Agents
✨ Agent Writers
✨ Prayer Agents
✨ Healing Hearts Bereaved Parent Support
✨ Ambassador Agents - Peer Support
EDUCATION for physicians, researchers and families:
✨ OsteoBites, weekly webinar & podcast with thought leaders and innovators in Osteosarcoma
✨ MIB Book: Osteosarcoma: From our Families to Yours
RESEARCH:
✨ Annual MIB FACTOR Research Conference
✨ Funding $100,000 annually for OS research
✨ MIB Testing & Research Directory
✨ The Osteosarcoma Project partner with Broad Institute of MIT and Harvard
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Kids are still dying with 40+ year old treatments. Help us MakeItBetter.
🔗 https://www.mibagents.org
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#Osteosarcoma #BoneCancer
Register for next week when John Healey, MD, Chief of Orthopedic Surgery at Memorial Sloan Kettering Cancer Center and MIB Agent Board of Director talks with us about Precision Surgery for Osteosarcoma.
MIBagents.org Register: https://bit.ly/MIBobites
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