Patient video on Kallmann syndrome (absent puberty with anosmia).

Patient video on Kallmann syndrome / congenital hypogonadotropic hypogonadism. (CHH)

Kallmann syndrome causes puberty to fail to start or to fully complete. It is also associated with a lack of sense of smell. Patients are often dismissed as being "late developers" or "late bloomers"

Early diagnosis and early treatment makes so much difference to the quality of lives of patients with Kallmann syndrome / CHH.

Facebook group for patients:

  / 114162694465  

Information web site:

http://delayed-puberty.com

Review paper with guidelines and information on the treatment and diagnosis of Kallmann syndrome / CHH:

http://www.nature.com/nrendo/journal/...

National organisation for rare disorders web page:

https://rarediseases.org/rare-disease...

Wordpress blog site:

https://kallmannsyndrome.wordpress.com