Phyllis Fehr: From an Early-Onset Alzheimer’s Diagnosis to a Speaking Engagement at the UN

This video is part of the Journey to Diagnosis series.

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Alzheimer’s advocate Phyllis Fehr joined Being Patient Live Talks to discuss her experience with diagnosis and dementia advocacy.

A former ICU nurse based in Canada, Fehr was diagnosed with early-onset Alzheimer’s at 53 years old. Since diagnosis, she has been involved in anti-stigma work related to dementia and promoting the rights and abilities of people living with dementia, both in Canada and internationally. She’s past member of the Ontario Dementia Advisory board and the Advisory Group for the Ontario Dementia strategy. She’s served on the boards for several dementia advocacy organizations and is a current board member of Reimagining Dementia: A Creative Coalition for Justice. Fehr previously served as the patient advisor for the Alzheimer’s Board for Canada and on the board for Dementia Action Alliance International.

She’s also the co-author of several research articles and the book, “How to Live Well with Dementia: Expert Help for People Living with Dementia and their Family, Friends, and Care Partners.” Fehr has also spoken at the United Nations, the Senate of Canada, and the World Health Organization on the human rights of people living with dementia.

Watch the full interview to learn more about her experience with Alzheimer’s and advocating for others like her.

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Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia.

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