Noa's story: Canavan disease
Автор: UMass Chan Medical School
Загружено: 2025-02-09
Просмотров: 189
Four-year-old Noa Greenwood is an inspiration for families facing Canavan disease, a rare genetic disorder. In June 2022, she became the third child to receive a promising gene therapy for the disease, developed by researchers at UMass Chan Medical School. This episode explores Noa’s story, her parents' commitment to rare disease awareness and the hope innovative treatments provides.
🎧 Listen and subscribe to all episodes of Rare Diseases, Real Stories on our website at umassmed.edu/rarediseasesrealstories or wherever you get your podcasts.
💜 Learn more about Canavan disease:
National Tay-Sachs & Allied Diseases Alliance, Inc.
https://ntsad.org/diseases/tay-sachs-...
Horae Gene Therapy Center at UMass Chan Medical School
https://www.umassmed.edu/gtc/about/ho...
🔗 Share Noa’s story using the following hashtags: #RareDiseasesRealStories, #RareDiseases, #podcast Interested in learning more about gene therapy research?
Email us at: [email protected]
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