PNRI Science: Rare Disease, Real Progress – Ep. 2–Driven by Diagnosis
Автор: Pacific Northwest Research Institute
Загружено: 2025-05-12
Просмотров: 9
In Episode 2 of PNRI Science: Rare Disease, Real Progress, three rare disease advocates share how personal experience has fueled their work to improve research, policy, and support for families. Recorded live at PNRI’s 2025 Rare Disease Day Symposium, this conversation highlights how patient voices are helping move promising therapies forward, shape legislation, and connect researchers with the communities they aim to serve. It’s a look at the power of lived experience—and what’s possible when advocacy and science work together.
To learn more about PNRI's 2025 Rare Disease Day symposium, visit: https://pnri.org/rarediseaseday2025/
To learn more about PNRI’s scientists and groundbreaking research, visit pnri.org.
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