Managing Reflux, Strictures and Associated Procedures for OA/TOF Patients

Welcome to the "Managing Reflux, Strictures and Associated Procedures" Q&A session with Prof Fullarton and Dr Lindley. [Tip: Use the quick links below to jump to any part of the video]

Prof. Fullarton is an Associate Professor of Surgery and Consultant Surgeon at University of Glasgow and Glasgow Royal Infirmary. Dr Lindley is a Consultant Paediatric Gastroenterologist at UCL Institute of Child Health and Great Ormond Street Hospital.

Please note: this Q&A was recorded via Zoom and we did have a few technical issues. However, we feel that the information covered is highly relevant and should be available to our audience.

We hold regular Q&As, talks and events for our members. For details of other events, please visit https://www.tofs.org.uk

00:00 Start
00:14 Should my daughter be weaned off Omeprazole and can reflux come back again if she is taken off the medication altogether?
03:57 My daughter is 13 months now and on 3/4 of a tablet of Lansoprazole. Do I just keep increasing the dose alongside her weight or try and wean her off the medication? She went onto the medication originally due to being diagnosed with silent reflux when she was 6 months old.
07:21 What do you look for when deciding a patient should stop taking Omeprazole? What would you look for in a silent reflux case, when deciding to start the Omeprazole again?
10:25 Is Erythromycin a useful drug for someone with Barrett’s Oesophagus?
13:06 For someone with Barrett’s when is the best time to take PPI?
14:45 I started Omeprazole 20mg back in about 1999. On further advice in 2011 this was increased to 80mgs a day with the addition of Ranitidine and Metoclopramide. I am now in my early 70s, is it alright to continue this for life as it works so well?
16:04 Is there any medication which particularly helps dysmotility?
23:26 How can I tell what is a stricture and what is dysmotility?
30:02 How will I know if my OA/TOF needs a stretch?
34:04 At what point should an adult OA/TOF be speaking to a doctor about reflux that they are experiencing?
37:16 Are adult OA/TOFs at risk of developing Barrett’s Oesophagus? Would taking supplements help?


About TOFS:
TOFS (Tracheo-Oesophageal Fistula Support) is a charity dedicated to improving the lives of people born with the OA/TOF condition and their carers. For over 40 years we have been helping people through the lifelong challenges that being born with OA/TOF (also known as EA/TEF in some parts of the world), VACTERL and associated conditions can bring.

Visit https://www.tofs.org.uk for more information and support.

Disclaimer: TOFS is not engaged in the practice of medicine, and any information provided is not intended or offered as medical advice and is absolutely not a substitute for the patient’s individual consultation with qualified healthcare professionals. Read more at: https://tofs.org.uk/terms-conditions/