I have Ehlers-Danlos Syndrome (and what that means)
Автор: Heather's Hikes & AdVANtures
Загружено: 2025-06-29
Просмотров: 3312
Well it's been a long term coming, and my journey is far from over, but I finally got the answer I've been searching so long for!
I was formally diagnosed with Hypermobile Ehlers-Danlos Syndrome at Mayo Clinic this week. In this video, I'll explain what exactly that means, how I finally got my diagnosis, and what comes next for me.
I'll link some informational videos about it below from some experts that can provide more details and information than I can for anyone that would like more info
====
Check out the Ehlers-Danlos Society website for more information (they also have a YouTube channel and FB page you can follow)
https://www.ehlers-danlos.com/
@TheEhlersDanlosSociety
====
Helpful/Informative Videos
@DoctorClair is another great channel to follow for EDS info:
EDS explained simply
• Ehlers-Danlos Syndromes (EDS) Explained: W...
hEDS diagnostic criteria
• 3 Diagnostic Criteria for HEDS | Dr. Clair...
pain management for Ehlers-Danlos
(by my EDS Dr!)
• 2023 Pain Management in EDS & HSD - Dr. Sh...
Доступные форматы для скачивания:
Скачать видео mp4
-
Информация по загрузке:
