Symptoms, Unmet Needs, and Quality of Life in ECD: Registry-Based Analysis | Medical Symposium 2025
Автор: ECD Global Alliance
Загружено: 2025-09-11
Просмотров: 14
This session from the Medical Symposium on Erdheim-Chester Disease (ECDGA 2025) in Barcelona, Spain, features Dr. Eli Diamond of Memorial Sloan Kettering Cancer Center, New York, USA. His presentation, “Symptoms, unmet needs, and quality of life in Erdheim-Chester disease: A longitudinal registry-based analysis”, provides valuable insights into the real-world experiences of patients living with ECD.
Erdheim-Chester disease (ECD) is a rare histiocytic neoplasm that presents unique challenges for both patients and clinicians. Dr. Diamond reviews data from a longitudinal registry, highlighting patterns of symptoms, gaps in current treatment approaches, and the impact of ECD on overall quality of life. This analysis underscores the need for improved therapeutic strategies, patient support systems, and global collaboration in research.
The talk was part of Day Two of the Medical Symposium program, hosted on May 27, 2025. This symposium brought together international experts, researchers, and clinicians to advance understanding of ECD and related histiocytic disorders, with sessions dedicated to diagnosis, treatment, patient management, and future research directions.
For more sessions from the ECDGA 2025 Medical Symposium, visit our channel to watch the full series of presentations and discussions.
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