Public Trust, Literacy & Health Data Foundations in Canada

About the Presentation:
It is critical for the public to have trust in governments and organizations that collect, protect, share and use health data — but how is this trust built? In this webinar, Dr. Kim McGrail and Julia Burt present findings from a collaboration with the Public Health Agency of Canada on public trust, literacy, and health data, including:

• the risks and benefits of data sharing
• the role of data literacy in building public trust
• the importance of the political and social context in which health systems operate
• the critical nature of transparency in earning trust

Julia and Dr. McGrail also share six recommendations for trustworthy data practices intended to help different levels of government, health system organizations, and others work together to earn trust in how health data are managed and used.

About the Speakers:
Julia Burt is HDRN Canada’s Public Engagement Operational Lead, working closely with the network’s Public Advisory Council to accelerate meaningful public engagement. She works with diverse members of the public on projects related to health data, including the co-creation of plain language about data, as well as exploring the public’s perception of acceptable uses and users of health data. Prior to her involvement with HDRN Canada, she was the Patient Engagement and Training and Capacity Lead with the Newfoundland and Labrador SPOR SUPPORT Unit.

Dr. Kimberlyn McGrail is the Associate Dean of Research in the School of Medicine at Simon Fraser University and the CEO and Scientific Director of HDRN Canada. Her research interests are quantitative policy evaluation and all aspects of population data science. Dr. McGrail is the 2009 -2010 Commonwealth Fund Harkness Associate in Health Care Policy and Practice, the 2016 recipient of the Cortlandt JG Mackenzie Prize for Excellence in Teaching, and the 2017 recipient of UBC’s Excellence in Clinical or Applied Research Award. She was part of the Expert Advisory Group for the pan-Canadian Health Data Strategy and is currently a member of the Global Partnership for AI as part of the Data Governance Working Group.

Land Acknowledgement:
We respectfully acknowledge that HDRN Canada is located on the traditional and unceded territories of the ʷməθkwəy̓əm (Musqueam), Sḵwx̱wú7mesh (Squamish), and Səl̓ílwətaɬ (Tsleil-Waututh) Nations, whom we acknowledge as the traditional owners and caretakers of those lands.