What does it really mean to grow up with Spina Bifida?

Patient zero, memoir, understanding. In this conversation, Steven Crane shares his personal journey living with spina bifida, discussing the challenges he faced from birth through adulthood. He reflects on the support from his family, the medical treatments he underwent, and the impact of his condition on his life. Steven emphasizes the importance of advocacy, understanding, and resilience, and how he found purpose through writing about his experiences. He also addresses the complexities of navigating multiple health conditions and the role of healthcare providers in supporting patients.



 



Key Takeaways:




• Spina bifida is a multifactorial condition with varying degrees of impact.


• Advocacy for oneself is essential in navigating healthcare.


• Writing can be a therapeutic outlet for personal experiences.


• Being a patient zero can be both a burden and a responsibility.


• Empathy and understanding from healthcare providers can significantly affect patient outcomes.


• There are often hidden blessings in challenging circumstances.


• Community and shared experiences can foster healing and connection.




 



Steven Crane is the author of the memoir "I Can Appreciate That", the novel "Staring at the Ceiling", numerous essays, and more than a million words of advertising copy. A graduate of the University of South Carolina, Steven lives in Marietta, GA, with his wife Carie. Their two sons are navigating college at University of GA and GA Southern. More at: www.brainsofsteel.com.



Facebook.com/ICATStory



Instagram: @icanappreciatethat



 



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Here are more resources related to today’s topic:




• Steven’s website (https://www.brainsofsteel.com/)


• Purchase “I Can Appreciate That” (https://www.barnesandnoble.com/w/i-ca...)


• Information on Spina Bifida from Mayo Clinic (https://www.mayoclinic.org/diseases-c...)


• Spina Bifida Association (https://www.spinabifidaassociation.org/)




 



Any inquiries on the podcast can be sent to [email protected] (mailto:[email protected])



Note that this podcast is for entertainment and education and is not intended to be a substitute for professional medical advice. Please consult your physician with any questions you may have regarding your health.



The All Access DNA team includes: host, producer and editor Kate Wilson. The logo is designed by Designs by NKJ. Our Social Media Lead is Casey Lepley.