Sickle Cell is a Disability: What the Health System Is Missing
Автор: Crimson Courage
Загружено: 2025-12-17
Просмотров: 62
In this powerful episode of Crimson Courage, we sit down with Lilly Webala of ZUWI Pharmacy to unpack the reality of living with sickle cell disease — through the lens of disability, healthcare gaps, and lived experience.
Recorded on International Persons with Disability Day, this conversation goes beyond theory and dives into what really happens on the ground in Kisumu.
Lilly shares:
How she supports sickle cell patients beyond medication. including counselling families
A heartbreaking story of a young boy facing stigma and abuse at home due to sickle cell
Why families must understand they all carry the gene
The gaps in how the health system treats sickle cell patients
Why many doctors understand sickle cell as a blood disorder, but not as a daily lived condition
The similarities between sickle cell and cancer in terms of diagnosis, treatment intensity, and hospital trauma
Why sickle cell should be recognised within disability conversations and policies
This episode challenges how we think about sickle cell — not as weakness, but as a condition that requires understanding, support, and systemic change.
🎧 Watch. Learn. Rethink.
#SickleCellAwareness #DisabilityInclusion #CrimsonCourage #IPWD #HealthEquity
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